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“进退两难”:痴呆症患者照料者对使用居家喘息服务的看法

"Between the devil and the deep blue sea": the beliefs of caregivers of people with dementia regarding the use of in-home respite services.

作者信息

Phillipson Lyn, Jones Sandra C

机构信息

Centre for Health Initiatives, University of Wollongong, Wollongong, New South Wales, Australia.

出版信息

Home Health Care Serv Q. 2011 Apr;30(2):43-62. doi: 10.1080/01621424.2011.569522.

Abstract

This article details results from qualitative research with caregivers in regard to the beliefs they associate with the use of in-home respite services. Outcomes are perceived by caregivers in relation to care recipient personal safety and the avoidance of negative consequences through the provision of supervision in the caregiver's absence. Use of in-home services challenges normative beliefs for some caregivers, particularly for spousal caregivers who feel it is their role to provide assistance that is needed in the home. Likewise, perceived inflexibility and the inability of in-home services to provide responsive and personalized care make the use of in-home services difficult and may inform control beliefs. Implications are discussed in relation to community care pathways and the promotion and development of in-home respite services to better target caregiver beliefs and respond to caregiver perceived needs.

摘要

本文详细介绍了针对照顾者开展的定性研究结果,这些结果涉及他们对使用居家喘息服务的相关看法。照顾者认为,居家喘息服务的结果与受照顾者的个人安全有关,并且通过在照顾者不在场时提供监督来避免负面后果。对一些照顾者而言,使用居家服务挑战了他们的传统观念,尤其是对配偶照顾者来说,他们觉得在家中提供所需帮助是自己的职责。同样,居家服务被认为缺乏灵活性,无法提供及时响应和个性化的护理,这使得使用居家服务变得困难,并且可能影响他们的控制观念。文中讨论了这些结果对社区护理途径以及居家喘息服务推广和发展的影响,以便更好地针对照顾者的观念并回应照顾者所感知到的需求。

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