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姑息治疗日间护理:英国服务使用者体验的定性研究。

Palliative day care: a qualitative study of service users' experiences in the United Kingdom.

机构信息

Faculty of Health, University of Plymouth, Plymouth, UK.

出版信息

Nurs Health Sci. 2011 Jun;13(2):178-83. doi: 10.1111/j.1442-2018.2011.00598.x. Epub 2011 May 20.

Abstract

In many countries, specialist palliative day care for patients with life-limiting conditions is provided by specific teams of professionals from a range of relevant disciplines. During 2006 to 2007, the day care services at a hospice in the U.K. were redesigned so that specialist palliative care sessions replaced the existing long-established, traditional day care model. The purpose of this study was to enhance the understanding of those aspects of the service that the users valued most (the "X-factor"). Qualitative data were collected via semistructured interviews with 29 patients and eight carers. These data were subjected to a framework analysis. The users of the service used poignant and powerful words to describe the special qualities that they valued, some phrasing it as the X-factor. The data are presented under three themes: the quality of the staff; the sense of community; and relationships. Of these, the relationships between and within the staff and patient groups held the greatest significance for the patients. Service providers need to recognize that opportunities for the formation of relationships between the patients, staff, and carers are of utmost importance when designing palliative day care services.

摘要

在许多国家,由来自多个相关学科的专业人员组成的特定团队为患有生命有限状况的患者提供专业的姑息日疗服务。在 2006 年至 2007 年期间,英国一家临终关怀机构对日间护理服务进行了重新设计,以便将专科姑息治疗课程取代现有的长期传统日疗模式。本研究旨在更深入地了解服务中用户最看重的那些方面(“X 因素”)。通过对 29 名患者和 8 名护理人员进行半结构化访谈收集定性数据。对这些数据进行了框架分析。服务使用者使用深刻而有力的词语来描述他们所看重的特殊品质,有些人将其表述为 X 因素。这些数据呈现为三个主题:员工素质;社区意识;以及人际关系。在这些因素中,工作人员之间以及患者和工作人员之间的关系对患者具有最重要的意义。服务提供者在设计姑息日疗服务时,需要认识到为患者、工作人员和护理人员之间建立关系提供机会至关重要。

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