Ikeda Tomomi, Nagai Toshisaburo, Kato-Nishimura Kumi, Mohri Ikuko, Taniike Masako
Department of Nursing, Faculty of Health Science, Hyogo University, Kakogawa, Hyogo, Japan.
Brain Dev. 2012 Mar;34(3):223-9. doi: 10.1016/j.braindev.2011.04.011. Epub 2011 May 23.
The present study was implemented to investigate relationships between sleep problems in physically disabled children and sleep quality and perceived burden of caregivers.
Subjects comprised 100 caregivers of disabled children, including 96 mothers, 2 fathers and 2 grandmothers. Questionnaires included demographic data for children and caregivers, sleep problems of children, and sleep quality (Pittsburgh sleep quality index (PSQI)) and perceived burden on caregivers (Japanese version of the Zarit Burden Interview (J-ZBI)). The sleep problems of children were evaluated according to the following five categories: "Problems initiating and maintaining sleep"; "Problems with sleep-related breathing"; "Problems with excessive somnolence"; "Problems with circadian rhythm"; and "Problems with sleep-related movement".
The children comprised 66 boys and 34 girls (age range, 1-17 years). Of these, 65 children could not sit up and 35 could. A total of 88 children were found to have one or more categories of sleep problems. The most common sleep problem was "Problems initiating and maintaining sleep" (64.8%), followed by "Problems with sleep-related movement" (59.1%). J-ZBI was significantly higher in caregivers of children with "Problems initiating and maintaining sleep". PSQI scores were significantly higher in caregivers of children with "Problems with sleep-related breathing" and "Problems with circadian rhythm". A significant correlation was identified between perceived J-ZBI and PSQI of the caregiver.
Increased focus on the sleep problems of disabled children is needed, particularly in relation to the sleep quality and perceived burden of caregivers.
本研究旨在调查身体残疾儿童的睡眠问题与睡眠质量以及照顾者感知负担之间的关系。
研究对象包括100名残疾儿童的照顾者，其中有96名母亲、2名父亲和2名祖母。问卷包括儿童和照顾者的人口统计学数据、儿童的睡眠问题、睡眠质量（匹兹堡睡眠质量指数（PSQI））以及照顾者的感知负担（中文版的 Zarit 负担访谈（J-ZBI））。儿童的睡眠问题根据以下五个类别进行评估：“入睡和维持睡眠困难”；“睡眠呼吸相关问题”；“过度嗜睡问题”；“昼夜节律问题”；以及“睡眠相关运动问题”。
儿童包括66名男孩和34名女孩（年龄范围为1至17岁）。其中，65名儿童无法坐起，35名儿童可以坐起。总共发现88名儿童存在一种或多种睡眠问题类别。最常见的睡眠问题是“入睡和维持睡眠困难”（64.8%），其次是“睡眠相关运动问题”（59.1%）。在有“入睡和维持睡眠困难”问题的儿童的照顾者中，J-ZBI得分显著更高。在有“睡眠呼吸相关问题”和“昼夜节律问题”的儿童的照顾者中，PSQI得分显著更高。照顾者的感知J-ZBI与PSQI之间存在显著相关性。
需要更加关注残疾儿童的睡眠问题，特别是与照顾者的睡眠质量和感知负担相关的问题。
