Department of Cardiology, St. Mary's Hospital, London, UK.
AIDS Patient Care STDS. 2011 Aug;25(8):465-73. doi: 10.1089/apc.2010.0279. Epub 2011 Jul 11.
Following the introduction of highly active antiretroviral therapy, an expanding cohort of adolescents with perinatally acquired HIV (PaHIV) is surviving and emerging from pediatric services with complex transition health care requirements. Transfer from pediatric to adult services has been associated with poorer health outcomes in other chronic diseases. Young people with HIV have the additional burden of stigma, secrecy, and the risk of transmitting HIV to partners and offspring. Maintaining engagement in health care during adolescence is critical. We compare reported satisfaction surveys of health care experiences and preferences of young people with PaHIV attending a U.K. transition outpatient service with young people attending a young persons' diabetes transition service in Australia. All 21 patients in the United Kingdom and 39 young people approached in Australia agreed to participate. The median age for both groups was 19 years, 67% of the PaHIV group were black African and 74% of diabetic group white Australian. Ninety-five percent (18/19) of those with PaHIV and 87% (34/39) with diabetes felt their transition was an easy process. Sixty-eight percent (13/19) of young people with PaHIV and 72% (28/39) of diabetic patients felt moving to their current service had a positive effect on their health. Being treated as an individual, comprehensive management explanations and encouragement to develop independence were cited as "strongly important" by over three quarters of participants with PaHIV. This service evaluation illustrates that careful transition can be a positive event for young people with PaHIV, comparable to that of a well-established diabetes services.
随着高效抗逆转录病毒疗法的引入，越来越多的在围产期感染艾滋病毒（PaHIV）的青少年得以幸存，并从儿科服务中脱离出来，需要接受复杂的过渡性医疗保健。从儿科服务转移到成人服务与其他慢性病的健康结果较差有关。感染艾滋病毒的年轻人除了面临耻辱、保密和将艾滋病毒传播给伴侣和后代的风险外，还有额外的负担。在青少年时期保持参与医疗保健至关重要。我们比较了英国过渡门诊服务中接受治疗的 PaHIV 青少年和澳大利亚青年糖尿病过渡服务中接受治疗的年轻人的医疗体验和偏好报告满意度调查。英国的 21 名患者和澳大利亚的 39 名年轻人均同意参与。两组的中位年龄均为 19 岁，PaHIV 组中有 67%是黑人非洲裔，糖尿病组中有 74%是白人澳大利亚人。95%（18/19）的 PaHIV 患者和 87%（34/39）的糖尿病患者认为他们的过渡过程很轻松。68%（13/19）的 PaHIV 患者和 72%（28/39）的糖尿病患者认为转到目前的服务对他们的健康有积极影响。被视为个体、全面的管理解释和鼓励独立被超过四分之三的 PaHIV 患者认为是“非常重要”的。这项服务评估表明，精心的过渡对 PaHIV 青少年来说是一个积极的事件，可以与成熟的糖尿病服务相媲美。
