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幕后:父母在儿童向成人糖尿病服务过渡中角色的变化。

Behind the scenes: the changing roles of parents in the transition from child to adult diabetes service.

机构信息

School of Nursing and Midwifery Studies, Cardiff, UK.

出版信息

Diabet Med. 2011 Aug;28(8):994-1000. doi: 10.1111/j.1464-5491.2011.03310.x.

DOI:10.1111/j.1464-5491.2011.03310.x
PMID:21480977
Abstract

AIMS

To explore the experiences of young people and their carers during the transition from child to adult diabetes services.

METHODS

Longitudinal qualitative case studies of young people and carers undergoing transition in five different diabetes services in the UK.

RESULTS

When young people make the transition from child to adult diabetes services, it is assumed that they will also undergo a parallel transition away from dependence on parents to independent diabetes management. However, the lives of young people are characterized by interdependencies, which are facilitative of their diabetes management and which are not always reflected in healthcare policy and practice. This can lead to discontinuities of information and undermine mothers' ability to continue to support their child into young adulthood. Mothers also lose contact with the service at a time when they are undergoing developmental challenges of their own and need support in adjusting to a new existence.

CONCLUSIONS

There is a clear need to develop service structures that recognize the continuing role played by mothers in the diabetes care of young adults.

摘要

目的

探讨年轻人及其照顾者在从儿童期向成人期糖尿病服务过渡期间的经历。

方法

对英国五家不同糖尿病服务机构中正在过渡的年轻人及其照顾者进行纵向定性案例研究。

结果

当年轻人从儿童期向成人期糖尿病服务机构过渡时,人们认为他们也将同时从依赖父母向独立的糖尿病管理过渡。然而,年轻人的生活特点是相互依存,这有助于他们的糖尿病管理,但这种情况并不总是反映在医疗保健政策和实践中。这可能导致信息不连续,并削弱母亲继续支持孩子进入成年期的能力。母亲在自身经历发展挑战的同时也与服务机构失去联系,她们需要支持以适应新的生活。

结论

显然需要制定服务结构,承认母亲在年轻人的糖尿病护理中继续发挥的作用。

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