School of Health and Medical Sciences, Örebro University, Sweden.
Palliat Med. 2013 Mar;27(3):257-64. doi: 10.1177/0269216312446103. Epub 2012 May 4.
Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support.
The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.
A prospective quasi-experimental design, including an intervention group and a comparison group, was used.
SETTINGS/PARTICIPANTS: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons.
Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes.
The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.
许多国家的医疗体系正在向门诊护理模式转变，在这种模式下，家庭成员在为患有危及生命疾病的患者提供护理方面起着核心作用。多项研究表明，家庭成员表示他们缺乏准备、知识和处理护理人员角色的能力，并且需要信息和心理社会支持。
本研究旨在调查在持续姑息治疗期间，为患有危及生命疾病患者的家庭成员提供支持小组计划的效果。
采用前瞻性准实验设计，包括干预组和对照组。
设置/参与者：在三个干预地点（两个专科姑息治疗病房和一个血液病房）为家庭成员提供姑息治疗期间的支持小组计划。第四个地点（一个专科姑息治疗病房）用于比较。
参加支持小组计划的家庭成员对护理准备、护理能力和护理回报的感知显著增加。希望、焦虑、抑郁症状和健康状况没有明显变化。
该干预措施包括在持续姑息治疗期间为患有危及生命疾病的患者的家庭成员提供的支持小组计划，在某些护理领域被证明是有效的。未发现负面结果。结果表明，这种干预措施可以在持续姑息治疗期间为家庭成员实施和提供。
