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癌症相关困扰的家庭照顾者及相关指标。

Family caregivers and indicators of cancer-related distress.

机构信息

a Behavioral Research Center , American Cancer Society , USA.

出版信息

Psychol Health Med. 2003 Feb 1;8(1):46-56. doi: 10.1080/1354850021000059250.

Abstract

Increases in the cost of medical care coupled with shorter hospital stays and an aging population are but a few of the reasons why home care for patients has become so important. This study examines variables that contribute to distress among lay-caregivers who provide home care to cancer survivors. Participants consisted of 135 survivor-caregiver dyads in which the caregiver was a member of the survivor's family or a close friend. Measures of caregiver distress were selected from the Ferrell et al. (1995) quality of life tool; predictor variables included cancer survivor and caregiver demographics, physical and emotional health status and behavioural characteristics. Hierarchical regression analysis indicated that, jointly, the three sets of indicators accounted for 35% of caregiver distress. Standardized regression coefficients indicated that relational deprivation (feelings of loss of togetherness, planned activities and contact with other individuals) was the most important predictor of caregiver distress (p<0.01). Female sex, less practice of healthy behaviours, greater number of patient care needs and pessimistic expectations (all ps<0.05) also were significant predictors in the final trimmed model. Results suggest that cancer support services that address the needs of the care receiver with the protection of the family caregiver in mind should be considered.

摘要

医疗成本的增加、住院时间的缩短以及人口老龄化等因素使得患者的家庭护理变得尤为重要。本研究考察了导致为癌症幸存者提供家庭护理的非专业护理人员(即照护者)产生压力的各种变量。研究对象包括 135 对幸存者-照护者二人组,其中照护者是幸存者的家庭成员或亲密朋友。照护者压力的衡量指标选自 Ferrell 等人(1995 年)的生活质量工具;预测变量包括癌症幸存者和照护者的人口统计学特征、身体和情绪健康状况以及行为特征。分层回归分析表明,这三组指标共同解释了 35%的照护者压力。标准化回归系数表明,关系剥夺(感觉失去了共同性、计划性活动和与他人的联系)是照护者压力的最重要预测因素(p<0.01)。女性、较少实践健康行为、更多的患者护理需求和悲观的期望(所有 p 值均<0.05)在最终修剪模型中也是重要的预测因素。研究结果表明,应该考虑为照顾者提供以保护家庭照顾者为出发点的癌症支持服务,以满足他们的需求。

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