Wohleber Ashley M, McKitrick Daniel S, Davis Shawn E
School of Professional Psychology, Pacific University, Hillsboro, OR 97123, USA.
Am J Hosp Palliat Care. 2012 Aug;29(5):335-45. doi: 10.1177/1049909111427139. Epub 2011 Nov 21.
Research in palliative care and hospice populations is important for improving quality of care, quality of life, and provider understanding of individuals at the end of life. However, this research involves many potential challenges. This review seeks to inform and assist researchers targeting to design studies targeting hospice and palliative care patients by presenting a thorough review of the published literature. This review covers English-language articles published from 1990 through 2009 listed in the PsycInfo, Medline, or CINAHL research databases under relevant keywords. Articles on pediatric hospice were not included. Issues discussed include study design, informed consent, and recruitment for participants. Synthesized recommendations for researchers in these populations are presented.
姑息治疗和临终关怀人群的研究对于提高护理质量、生活质量以及医护人员对临终患者的理解至关重要。然而，这项研究涉及许多潜在挑战。本综述旨在通过全面回顾已发表的文献，为旨在设计针对临终关怀和姑息治疗患者的研究的研究人员提供信息并提供帮助。本综述涵盖了1990年至2009年期间发表在PsycInfo、Medline或CINAHL研究数据库中、以相关关键词列出的英文文章。关于儿科临终关怀的文章未被纳入。讨论的问题包括研究设计、知情同意和参与者招募。并针对这些人群的研究人员提出了综合建议。
