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儿科哮喘患者照顾者生活质量问卷是监测儿童哮喘的有用工具。

Pediatric asthma caregiver's quality of life questionnaire is a useful tool for monitoring asthma in children.

机构信息

Department of Pediatrics and Allergy, Medical University of Lodz, N. Copernicus Hospital, 62 Pabianicka Str., 93-513, Lodz, Poland.

出版信息

Qual Life Res. 2012 Nov;21(9):1639-42. doi: 10.1007/s11136-011-0070-x. Epub 2011 Dec 4.

Abstract

PURPOSE

There is little agreement among researchers whether a caregiver's QOL can be used to detect changes in asthma severity in children. We assessed correlation between QOL in parents and QOL in children with asthma as well as clinical parameters of asthma. We determined whether changes in caregiver's QOL scores reflect changes in child's QOL and their asthma control.

METHODS

This was a 9-week period cohort study. One hundred and ten primary caregivers with 110 children were seen in the clinic at enrollment, at week #1, #5 and #9. At each visit, the parents completed the pediatric asthma caregiver's quality of life questionnaire (PACQLQ).

RESULTS

One hundred and one children and 101 caregivers completed the study. We found a significant correlation between asthma diary score in children and QOL in parents (from r = -0.46 to r = -0.53). We also found significant positive correlation between PAQLQ and PACQLQ and significant association between changes in asthma control and PACQLQ score for both domains. We observed significant change in PACQLQ of caregivers whose children obtained asthma control.

CONCLUSIONS

PACQLQ is a useful tool for monitoring asthma in children. The implementation of the PACQLQ would be helpful in involving parents in therapy of their children with asthma.

摘要

目的

研究人员对于父母的生活质量(QOL)能否用于检测儿童哮喘严重程度的变化意见不一。我们评估了父母的 QOL 与哮喘儿童的 QOL 以及哮喘的临床参数之间的相关性。我们还确定了照顾者 QOL 评分的变化是否反映了儿童 QOL 和哮喘控制的变化。

方法

这是一项为期 9 周的队列研究。在入组时、第 1、5 和 9 周,共有 110 名患儿及其 110 名主要照顾者在诊所接受了检查。每次就诊时,父母都要填写儿童哮喘照顾者生活质量问卷(PACQLQ)。

结果

共有 101 名儿童和 101 名照顾者完成了研究。我们发现儿童哮喘日记评分与父母的 QOL 之间存在显著相关性(r 从 -0.46 到 -0.53)。我们还发现 PAQLQ 和 PACQLQ 之间存在显著的正相关,哮喘控制的变化与 PACQLQ 评分的两个领域均存在显著的关联。我们观察到那些孩子哮喘得到控制的照顾者的 PACQLQ 有显著变化。

结论

PACQLQ 是监测儿童哮喘的有用工具。实施 PACQLQ 将有助于让父母参与到他们孩子的哮喘治疗中。

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