Department of Pediatrics, Gastroenterology, Hepatology and Nutrition, Medical University of Gdansk, ul. Nowe Ogrody 1-6, 80-03, Gdansk, Poland.
Eur J Pediatr. 2012 Apr;171(4):719-23. doi: 10.1007/s00431-011-1646-8. Epub 2011 Dec 15.
Published epidemiologic data on the administration rates of enteral/parenteral home nutrition is very limited. The aim of this first nationwide study was to assess the availability of pediatric home enteral nutrition (HEN) services in Poland. The questionnaire was sent to all regional centers providing pediatric HEN services in Poland (n = 14). The analysis included the number of pediatric patients who received HEN in 2010, their demographic characteristics and geographical distribution. Furthermore, the distributions of indications and methods of enteral nutrition administration were analyzed, along with the reasons of withdrawal from the HEN program. The number and fraction of children receiving HEN increased in 2010, from 433 (11.34 per 1 million inhabitants) on January 1st to 525 (13.75) on December 31st. Marked differences were observed in geographical distribution of this parameter, from zero to up to 30 pediatric patients per 1 million inhabitants. Median age of patients was 6 years (range: 9 months-18 years). In most cases, HEN was prescribed due to neurological disorders (n = 337, 64.2%), and administered by means of gastrostomy (n = 450, 85.71%). This study revealed the dynamic development of pediatric HEN services in Poland but also documented their potential regional shortages.
有关肠内/肠外家庭营养管理率的发表的流行病学数据非常有限。本项首次全国性研究旨在评估波兰儿科家庭肠内营养（HEN）服务的可及性。问卷被发送给波兰所有提供儿科 HEN 服务的区域中心（n = 14）。分析包括 2010 年接受 HEN 的儿科患者数量、其人口统计学特征和地理分布。此外，还分析了肠内营养管理的适应证和方法分布，以及退出 HEN 计划的原因。2010 年，接受 HEN 的儿童数量和比例有所增加，从 1 月 1 日的 433 人（每 100 万居民 11.34 人）增加到 12 月 31 日的 525 人（每 100 万居民 13.75 人）。该参数的地理分布存在显著差异，从 0 到每 100 万居民多达 30 名儿童。患者的中位年龄为 6 岁（范围：9 个月-18 岁）。在大多数情况下，由于神经障碍（n = 337，64.2%）处方 HEN，并通过胃造口术（n = 450，85.71%）进行管理。本研究揭示了波兰儿科 HEN 服务的动态发展，但也记录了其潜在的区域短缺。
