Granger C V, Cotter A C, Hamilton B B, Fiedler R C, Hens M M
Department of Rehabilitation Medicine, Buffalo General Hospital, NY.
Arch Phys Med Rehabil. 1990 Oct;71(11):870-5.
The purpose of this study was to investigate disability in persons with multiple sclerosis (MS) by using combinations of functional assessment scales and subscales to predict (1) the burden of care measured in minutes of assistance provided per day by another person in the home, and (2) the subject's level of satisfaction with life in general. The Functional Independence Measure (FIM), Incapacity Status Scale, Environmental Status Scale, and the Barthel Index had high intercorrelations with each other. Although each was predictive of the MS subject's physical care needs, the FIM was the most useful. A change in total FIM score of one point was equivalent to an average of 3.38 minutes of help from another person per day. With the Brief Symptom Inventory and the Environmental Status Scale, the FIM contributed to predicting the patient's general satisfaction as well. We propose that burden of care and subjective satisfaction with life be the standards by which functional assessment instruments are compared to reflect, in pragmatic terms, the impact of disability on the lives of individuals and on the human and economic resources of the community.
本研究的目的是通过使用功能评估量表和分量表的组合来调查多发性硬化症（MS）患者的残疾情况，以预测：（1）由家中其他人提供帮助的分钟数衡量的护理负担；（2）受试者总体生活满意度水平。功能独立性评定量表（FIM）、失能状态量表、环境状态量表和巴氏指数彼此之间具有高度的相互关联性。尽管每种量表都能预测MS患者的身体护理需求，但FIM最为有用。FIM总分每变化1分相当于每天从他人那里获得平均3.38分钟的帮助。通过简明症状量表和环境状态量表，FIM也有助于预测患者的总体满意度。我们建议，护理负担和生活主观满意度应作为比较功能评估工具的标准，以便从实际角度反映残疾对个人生活以及社区人力和经济资源的影响。
