电子患者日记与问卷——电子患者报告结局现正兑现承诺？ - Suppr

Electronic Patient Diaries and Questionnaires - ePRO Now Delivering on the Promise?

作者信息

Tiplady Brian

机构信息

1 PRO Consulting, Twickenham, UK 2 Department of Anaesthesia, Critical Care and Pain Medicine, Royal Infirmary of Edinburgh, University of Edinburgh, Edinburgh, UK.

出版信息

Patient. 2010 Sep 1;3(3):179-83. doi: 10.2165/11537600-000000000-00000.

DOI:10.2165/11537600-000000000-00000

PMID:22273397

Abstract

摘要

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Electronic Patient Diaries and Questionnaires - ePRO Now Delivering on the Promise?电子患者日记与问卷——电子患者报告结局现正兑现承诺？

Patient. 2010 Sep 1;3(3):179-83. doi: 10.2165/11537600-000000000-00000.

Use of In-Game Rewards to Motivate Daily Self-Report Compliance: Randomized Controlled Trial.使用游戏内奖励激励每日自我报告依从性：随机对照试验。

J Med Internet Res. 2019 Jan 3;21(1):e11683. doi: 10.2196/11683.

Developing a real-time electronic symptom monitoring system for patients after discharge following cancer-related surgery.开发一种用于癌症手术后出院患者的实时电子症状监测系统。

BMC Cancer. 2019 May 17;19(1):463. doi: 10.1186/s12885-019-5657-6.

Implementation of a cloud-based electronic patient-reported outcome (ePRO) platform in patients with advanced cancer.在晚期癌症患者中实施基于云的电子患者报告结局（ePRO）平台。

J Patient Rep Outcomes. 2021 Sep 15;5(1):91. doi: 10.1186/s41687-021-00358-2.

Evaluation of electronic patient-reported outcome assessment with cancer patients in the hospital and at home.对癌症患者在医院和家中进行电子患者报告结局评估。

BMC Med Inform Decis Mak. 2015 Dec 23;15:110. doi: 10.1186/s12911-015-0230-y.

Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO Good Research Practices Task Force report.关于支持电子和纸质患者报告结局（PRO）测量等效性所需证据的建议：国际药物经济学与结果研究协会（ISPOR）电子PRO良好研究实践工作组报告

Value Health. 2009 Jun;12(4):419-29. doi: 10.1111/j.1524-4733.2008.00470.x. Epub 2008 Nov 11.

A real-time electronic symptom monitoring system for patients after discharge following surgery: a pilot study in cancer-related surgery.手术后出院患者实时电子症状监测系统：一项癌症相关手术的试点研究。

BMC Cancer. 2020 Jun 10;20(1):543. doi: 10.1186/s12885-020-07027-5.

Validity of five foot and ankle specific electronic patient-reported outcome (ePRO) instruments in patients undergoing elective orthopedic foot or ankle surgery.五种足部和踝关节特定的电子患者报告结局（ePRO）工具在接受择期矫形足部或踝关节手术患者中的有效性。

Foot Ankle Surg. 2021 Jan;27(1):52-59. doi: 10.1016/j.fas.2020.02.003. Epub 2020 Feb 12.

Technical report: an ePRO patient reported outcome program for the evaluation of patients with irritable bowel syndrome.技术报告：用于评估肠易激综合征患者的电子患者报告结局程序（ePRO）。

Neurogastroenterol Motil. 2014 Feb;26(2):290-4. doi: 10.1111/nmo.12255. Epub 2013 Dec 3.

Electronic-Based Patient-Reported Outcomes: Willingness, Needs, and Barriers in Adjuvant and Metastatic Breast Cancer Patients.基于电子设备的患者报告结局：辅助性和转移性乳腺癌患者的意愿、需求及障碍

JMIR Cancer. 2017 Aug 7;3(2):e11. doi: 10.2196/cancer.6996.

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Capturing Patient-Reported Outcome (PRO) Data Electronically: The Past, Present, and Promise of ePRO Measurement in Clinical Trials.以电子方式收集患者报告结局（PRO）数据：临床试验中电子PRO测量的过去、现在与前景

Patient. 2015 Aug;8(4):301-9. doi: 10.1007/s40271-014-0090-z.

本文引用的文献

Value Health. 2009 Jun;12(4):419-29. doi: 10.1111/j.1524-4733.2008.00470.x. Epub 2008 Nov 11.

Progress in assessing physical function in arthritis: PROMIS short forms and computerized adaptive testing.关节炎身体功能评估的进展：患者报告结果测量信息系统简表及计算机自适应测试

J Rheumatol. 2009 Sep;36(9):2061-6. doi: 10.3899/jrheum.090358.

Optimal recall periods for patient-reported outcomes: challenges and potential solutions.患者报告结局的最佳回忆期：挑战与潜在解决方案。

Curr Med Res Opin. 2009 Apr;25(4):929-42. doi: 10.1185/03007990902774765.

Milnacipran for the treatment of fibromyalgia in adults: a 15-week, multicenter, randomized, double-blind, placebo-controlled, multiple-dose clinical trial.米那普明治疗成人纤维肌痛：一项为期15周的多中心、随机、双盲、安慰剂对照、多剂量临床试验。

Clin Ther. 2008 Nov;30(11):1988-2004. doi: 10.1016/j.clinthera.2008.11.009.

Equivalence of electronic and paper-and-pencil administration of patient-reported outcome measures: a meta-analytic review.患者报告结局测量的电子管理与纸笔管理的等效性：一项荟萃分析综述。

Value Health. 2008 Mar-Apr;11(2):322-33. doi: 10.1111/j.1524-4733.2007.00231.x.

Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance.行业指南：患者报告的结局指标：用于医疗产品开发以支持标签声明：指南草案

Health Qual Life Outcomes. 2006 Oct 11;4:79. doi: 10.1186/1477-7525-4-79.

Electronic diaries and questionnaires: designing user interfaces that are easy for all patients to use.电子日记和调查问卷：设计便于所有患者使用的用户界面。

Qual Life Res. 2004 Sep;13(7):1199-207. doi: 10.1023/B:QURE.0000037501.92374.e1.

Safety and efficacy of ketorolac tromethamine 0.4% ophthalmic solution in post-photorefractive keratectomy patients.0.4% 酮咯酸氨丁三醇滴眼液在准分子激光原位角膜磨镶术后患者中的安全性和有效性

J Cataract Refract Surg. 2004 Aug;30(8):1653-60. doi: 10.1016/j.jcrs.2004.05.019.

Wireless real-time electronic data capture for self-assessment of motor function and quality of life in Parkinson's disease.用于帕金森病运动功能和生活质量自我评估的无线实时电子数据采集

Mov Disord. 2004 Apr;19(4):446-51. doi: 10.1002/mds.10690.

Understanding recall of weekly pain from a momentary assessment perspective: absolute agreement, between- and within-person consistency, and judged change in weekly pain.从即时评估角度理解每周疼痛的回忆：绝对一致性、个体间和个体内的一致性以及每周疼痛的判断变化。

Pain. 2004 Jan;107(1-2):61-9. doi: 10.1016/j.pain.2003.09.020.

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Electronic Patient Diaries and Questionnaires - ePRO Now Delivering on the Promise?

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