School of Health and Related Research, University of Sheffield, Sheffield, UK.
Aging Ment Health. 2012;16(5):576-83. doi: 10.1080/13607863.2011.651430. Epub 2012 Feb 24.
First, to use participative research methods to obtain views from people with dementia and carers about their experiences and the interventions that they consider can assist in facilitating independence and quality of life post diagnosis. Second, to use these views to identify priority topics for a potential self-management programme. Third, to explore the relevance of the identified topics with a consultation group of people with dementia and their carers, thus informing the creation of a draft self-management programme.
A series of individual and dyad interviews were conducted with people with dementia and family carers to explore their experiences post diagnosis and obtain views of how quality life can be maintained while living with dementia. A further group of people with dementia and carers then met over six successive weeks to explore and provide feedback on the topic areas generated out of the initial interviews and add to the content.
Data generated from the individual interviews identified a number of themes for a potential self-management group which were then validated through consultation. Optimum modes of delivery of a self-management programme were also indicated.
A draft programme has been constructed building upon the framework of identified priorities. The process and outputs from the consultation also indicated the significant ramifications of such a programme for services.
首先，使用参与式研究方法从痴呆症患者和护理人员那里获取他们的观点，了解他们的经历以及他们认为可以帮助促进诊断后独立性和生活质量的干预措施。其次，利用这些观点确定潜在自我管理计划的优先主题。第三，与一组痴呆症患者及其护理人员进行咨询，探讨确定主题的相关性，从而为自我管理计划的制定提供信息。
对痴呆症患者和家庭护理人员进行了一系列的个人和二人访谈，以探讨他们的诊断后经历，并了解如何在患有痴呆症的同时保持生活质量。然后，另一组痴呆症患者和护理人员在六周内多次会面，探讨和反馈从最初访谈中产生的主题领域，并添加内容。
从个人访谈中生成的用于潜在自我管理小组的一些主题，然后通过咨询进行验证。也确定了自我管理计划的最佳交付模式。
在确定的优先事项框架基础上，构建了一个草案方案。咨询的过程和结果也表明了这样一个方案对服务的重大影响。
