Haour-Knipe Mary
Independent Advisor, Geneve, Switzerland.
AIDS Care. 2009;21 Suppl 1(S1):43-8. doi: 10.1080/09540120902923071.
Migration is very often a family affair, and often involves children, directly or indirectly. It may give rise to better quality of life for an entire family, or to bitter disappointment, and may also increase vulnerability to HIV and AIDS. This review, carried out for the Joint Learning Initiative on Children and AIDS, links the literature on "migration", on "HIV and AIDS" and on "families". Three themes are sketched: (1) As both HIV prevalence and circular migration increase, former migrant workers affected by AIDS may return to their families for care and support, especially at the end of life, often under crisis conditions. Families thus lose promising members, as well as sources of support. However, very little is known about the children of such migrants. (2) Following patterns of migration established for far different reasons, children may have to relocate to different places, sometimes over long distances, if their AIDS-affected parents can no longer care for them. They face the same adaptation challenges as other children who move, but complicated by loss of parent(s), AIDS stigma, and often poverty. (3) The issue of migrant families living with HIV has been studied to some extent, but mainly in developed countries with a long history of migration, and with little attention paid to the children in such families. Difficulties include involuntary separation from family members, isolation and lack of support, disclosure and planning for children's care should the parent(s) die and differences in treatment access within the same family. Numerous research and policy gaps are defined regarding the three themes, and a call is made for thinking about migration, families and AIDS to go beyond description to include resilience theory, and to go beyond prevention to include care.
移民往往是整个家庭的事情,常常直接或间接地涉及儿童。这可能会给整个家庭带来更高的生活质量,也可能导致极度失望,还可能增加感染艾滋病毒和患艾滋病的风险。本次为儿童与艾滋病联合学习倡议开展的综述,将“移民”、“艾滋病毒与艾滋病”以及“家庭”方面的文献联系起来。勾勒出了三个主题:(1)随着艾滋病毒感染率和循环移民的增加,受艾滋病影响的前移民工人可能会回到家人身边寻求照顾和支持,尤其是在生命末期,而且往往是在危机情况下。家庭因此失去了有前途的成员以及支持来源。然而,对于这些移民的子女,我们了解得非常少。(2)按照因截然不同的原因而形成的移民模式,如果受艾滋病影响的父母无法再照顾他们,孩子们可能不得不搬到不同的地方,有时距离很远。他们面临着与其他流动儿童相同的适应挑战,但因失去父母、艾滋病污名化以及常常伴随的贫困而变得更加复杂。(3)对于感染艾滋病毒的移民家庭问题,已经进行了一定程度的研究,但主要是在有悠久移民历史的发达国家,而且很少关注这类家庭中的儿童。困难包括与家庭成员的非自愿分离、孤立无援、缺乏支持、父母去世时孩子的信息披露和照料规划,以及同一家庭中在获得治疗方面的差异。针对这三个主题确定了众多研究和政策空白,并呼吁在思考移民、家庭和艾滋病问题时,不仅要进行描述,还要纳入复原力理论,不仅要关注预防,还要涵盖照料。