Cordner Alissa, Ciplet David, Brown Phil, Morello-Frosch Rachel
Sociology Department, Brown University, Providence, USA.
Soc Mov Stud. 2012;11(2):161-176. doi: 10.1080/14742837.2012.664898. Epub 2012 Apr 2.
Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars.
针对环境问题开展的社区参与式研究重塑了研究者与参与者之间的关系、学术界与社区的互动,以及社区伙伴在保护人类受试者和进行伦理监督方面的作用。我们借鉴自身以及他人与环境卫生和正义社会运动组织的研究合作经验,来探讨社区参与式研究中出现的伦理问题。在本文中,我们引入了反思性研究伦理的概念:即依赖于对研究者与参与者之间关系持续进行反思的伦理准则和决策原则。以这种方式看待伦理问题有助于科学家开展研究,既能达到高水平的专业操守,又能保护研究者以及受研究影响的多个群体的权利、福祉和自主性。我们重点介绍了我们在马萨诸塞州、加利福尼亚州和阿拉斯加与社区组织开展的研究,并讨论了社区或社会运动对研究过程的潜在影响以及研究对社区或社会运动目标的潜在影响。最后,我们讨论了社区参与式研究中出现的伦理问题如何推动了伦理研究实践的进步。这类工作引发了一些伦理问题,其答案对社会运动、环境和公共卫生学者具有广泛的相关性。