School of Rehabilitation Science, McMaster University, Hamilton, Canada.
Disabil Rehabil. 2013 May;35(9):766-74. doi: 10.3109/09638288.2012.707746. Epub 2012 Aug 20.
More than 50% of people over the age of 30 live with at least one chronic condition that influences their Health Related Quality of Life (HRQOL). No uniform framework for conceptualization of HRQOL is currently recognized, although several important domains have been identified. Recently, satisfaction with care has been suggested as an important component to be included in the measures of HRQOL.
The objective of this review is to explore what is known from the literature about the relationship between satisfaction with care and HRQOL in patients living with chronic conditions.
A scoping review methodology guided this work.
The results support the observation of a positive correlation between satisfaction with care and HRQOL; however, the directionality of the relationships could not be established. Although change in the way we organize and provide treatment might not be expected to lead to a significant change in functional performance of the individuals, we can potentially affect people's perception of disability, and improve their control and coping with the illness.
The review highlights the importance of using appropriate and psychometrically sound measures when assessing HRQOL. Studies are needed that explore longitudinally the relationships between the care experiences and HRQOL.
超过 50%的 30 岁以上人群至少患有一种影响其健康相关生活质量（HRQOL）的慢性疾病。目前尚未认可用于概念化 HRQOL 的统一框架，尽管已经确定了几个重要的领域。最近，有人提出对护理的满意度是要纳入 HRQOL 衡量标准的一个重要组成部分。
本综述的目的是探讨文献中关于患有慢性病的患者对护理的满意度与 HRQOL 之间关系的了解。
采用范围综述方法指导此项工作。
结果支持这样一种观察，即对护理的满意度与 HRQOL 之间存在正相关关系；但是，无法确定这些关系的方向。尽管我们组织和提供治疗的方式的改变可能不会导致个人的功能表现发生重大变化，但我们有可能会影响人们对残疾的看法，并改善他们对疾病的控制和应对能力。
该综述强调了在评估 HRQOL 时使用适当和具有心理测量学意义的措施的重要性。需要进行研究，以纵向探讨护理体验与 HRQOL 之间的关系。
