自闭症谱系障碍：临床、卫生服务和成本效益应用评估的措施综述。
Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications.
机构信息
Division of Pharmaceutical Evaluation and Policy, University of Arkansas for Medical Sciences, Little Rock, USA.
出版信息
Expert Rev Pharmacoecon Outcomes Res. 2012 Aug;12(4):485-503. doi: 10.1586/erp.12.29.
Abstract
Autism spectrum disorders (ASDs) are characterized by impairments in social interaction, communication and behavioral functioning that can affect the health-related quality-of-life outcomes of the affected child and the family. ASDs have increased in prevalence, leading to a demand for improved understanding of the comparative effectiveness of different pharmacologic, behavioral, medical and alternative treatments for children as well as systems for providing services. This review describes outcome instruments that can be used for clinical, health services and cost-effectiveness applications. There is a pressing need to identify the most appropriate instruments for measuring health-related quality-of-life outcomes in this population. Studies evaluating the cost-effectiveness of interventions or treatments for children with ASDs using the cost per quality-adjusted life year metric are lacking. Researchers have the potential to contribute greatly to the field of autism by quantifying outcomes that can inform optimal treatment strategies.
摘要
自闭症谱系障碍（ASD）的特征是社交互动、沟通和行为功能受损，这可能会影响受影响儿童及其家庭的与健康相关的生活质量结果。ASD 的患病率有所增加，这导致人们对不同药物治疗、行为治疗、医疗和替代治疗以及提供服务的系统的相对有效性有了更高的要求。本综述介绍了可用于临床、医疗服务和成本效益应用的结果评估工具。目前迫切需要确定最适合测量该人群健康相关生活质量结果的工具。使用质量调整生命年指标衡量 ASD 儿童干预或治疗成本效益的研究还很缺乏。研究人员通过量化可以为最佳治疗策略提供信息的结果，有潜力为自闭症领域做出重大贡献。
相似文献
1
Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications.自闭症谱系障碍：临床、卫生服务和成本效益应用评估的措施综述。
Expert Rev Pharmacoecon Outcomes Res. 2012 Aug;12(4):485-503. doi: 10.1586/erp.12.29.
2
Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: a comparison of generic instruments.自闭症谱系障碍儿童基于偏好的健康相关生活质量结局：通用工具的比较。
Pharmacoeconomics. 2012 Aug 1;30(8):661-79. doi: 10.2165/11597200-000000000-00000.
3
Predicting health utilities for children with autism spectrum disorders.预测自闭症谱系障碍儿童的健康效用值。
Autism Res. 2014 Dec;7(6):649-63. doi: 10.1002/aur.1409. Epub 2014 Sep 25.
4
5
Understanding and addressing the impact of autism on the family.了解并应对自闭症对家庭的影响。
LDI Issue Brief. 2012 Apr-May;17(7):1-4.
6
Parent-mediated early intervention for young children with autism spectrum disorders (ASD).针对自闭症谱系障碍（ASD）幼儿的家长介导早期干预。
Cochrane Database Syst Rev. 2013 Apr 30;2013(4):CD009774. doi: 10.1002/14651858.CD009774.pub2.
7
Costs of autism spectrum disorders in the United Kingdom and the United States.自闭症谱系障碍的成本：英国和美国的比较
JAMA Pediatr. 2014 Aug;168(8):721-8. doi: 10.1001/jamapediatrics.2014.210.
8
9
Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006.自闭症谱系障碍的患病率 - 美国自闭症与发育障碍监测网络，2006年
MMWR Surveill Summ. 2009 Dec 18;58(10):1-20.
10
Current perspectives on physical activity and exercise recommendations for children and adolescents with autism spectrum disorders.当前关于自闭症谱系障碍儿童和青少年身体活动和运动建议的观点。
Phys Ther. 2014 Jun;94(6):875-89. doi: 10.2522/ptj.20130157. Epub 2014 Feb 13.
引用本文的文献
1
Evaluating the Verbal Behavior Milestones Assessment and Placement Program (VB-MAPP) Scores Using Principal Components Analysis.使用主成分分析法评估言语行为里程碑评估与安置计划（VB-MAPP）分数
Cureus. 2024 Aug 10;16(8):e66602. doi: 10.7759/cureus.66602. eCollection 2024 Aug.
2
An Internal Consistency Reliability Study of the Catalyst Datafinch Applied Behavior Analysis Data Collection Application With Autistic Individuals.针对自闭症个体的Catalyst Datafinch应用行为分析数据收集应用程序的内部一致性信度研究。
Cureus. 2024 Apr 16;16(4):e58379. doi: 10.7759/cureus.58379. eCollection 2024 Apr.
3
Effectiveness of IMPUTE ADT-1 mobile application in children with autism spectrum disorder: An interim analysis of an ongoing randomized controlled trial.IMPUTE ADT-1移动应用程序对自闭症谱系障碍儿童的有效性：一项正在进行的随机对照试验的中期分析。
J Neurosci Rural Pract. 2024 Apr-Jun;15(2):262-269. doi: 10.25259/JNRP_599_2023. Epub 2024 Feb 13.
4
Emotion regulation and social responsiveness in adults with autism spectrum disorder.自闭症谱系障碍成人的情绪调节与社会反应能力
J Neurosci Rural Pract. 2023 Apr-Jun;14(2):276-279. doi: 10.25259/JNRP_19_2022. Epub 2023 Mar 4.
5
Analysis of research on the effectiveness of using probiotics for children with autism spectrum disorders, in order to reduce the core and accompanying autism symptoms. Review of randomized clinical trials.分析关于使用益生菌治疗自闭症谱系障碍儿童以减轻自闭症核心症状及伴随症状有效性的研究。随机临床试验综述。
Postep Psychiatr Neurol. 2022 Mar;31(1):25-34. doi: 10.5114/ppn.2022.115244. Epub 2022 Apr 5.
6
Parents' pandemic stress, parental involvement, and family quality of life for children with autism.家长的疫情压力、父母参与度与自闭症儿童的家庭生活质量。
Front Public Health. 2022 Dec 1;10:1061796. doi: 10.3389/fpubh.2022.1061796. eCollection 2022.
7
Outcome measures for economic evaluations and cost-effectiveness analyses of interventions for people with intellectual disabilities: A methodological systematic review.针对智力残疾者干预措施的经济评估和成本效益分析的结果测量：方法学系统评价。
J Appl Res Intellect Disabil. 2023 Mar;36(2):230-240. doi: 10.1111/jar.13056. Epub 2022 Nov 30.
8
Memantine for autism spectrum disorder.美金刚治疗自闭症谱系障碍。
Cochrane Database Syst Rev. 2022 Aug 25;8(8):CD013845. doi: 10.1002/14651858.CD013845.pub2.
9
Early intervention for young children with autism spectrum disorder: protocol for a scoping review of economic evaluations.早期干预自闭症谱系障碍幼儿：经济评价的范围综述研究方案。
Syst Rev. 2021 Nov 10;10(1):295. doi: 10.1186/s13643-021-01847-7.
10
Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review.自闭症谱系障碍儿童或青少年家长的生活质量及参与干预情况：一项系统综述
J Pers Med. 2021 Sep 8;11(9):894. doi: 10.3390/jpm11090894.
本文引用的文献
1
Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: a comparison of generic instruments.自闭症谱系障碍儿童基于偏好的健康相关生活质量结局：通用工具的比较。
Pharmacoeconomics. 2012 Aug 1;30(8):661-79. doi: 10.2165/11597200-000000000-00000.
2
A multisite study of the clinical diagnosis of different autism spectrum disorders.一项关于不同自闭症谱系障碍临床诊断的多中心研究。
Arch Gen Psychiatry. 2012 Mar;69(3):306-13. doi: 10.1001/archgenpsychiatry.2011.148. Epub 2011 Nov 7.
3
Economics of individualization in comparative effectiveness research and a basis for a patient-centered health care.个体化经济学在比较效果研究及以患者为中心的医疗保健中的应用。
J Health Econ. 2011 May;30(3):549-59. doi: 10.1016/j.jhealeco.2011.03.004. Epub 2011 Apr 23.
4
Prevalence of autism spectrum disorders in a total population sample.总体人群样本中自闭症谱系障碍的流行率。
Am J Psychiatry. 2011 Sep;168(9):904-12. doi: 10.1176/appi.ajp.2011.10101532. Epub 2011 May 9.
5
Quality of life of adolescents with autism spectrum disorders: concordance among adolescents' self-reports, parents' reports, and parents' proxy reports.自闭症谱系障碍青少年的生活质量：青少年自我报告、父母报告和父母代理报告的一致性。
Qual Life Res. 2012 Feb;21(1):53-7. doi: 10.1007/s11136-011-9916-5. Epub 2011 Apr 21.
6
Health-related quality of life in children and adolescents with autism spectrum disorder.患有自闭症谱系障碍的儿童和青少年的健康相关生活质量。
Z Kinder Jugendpsychiatr Psychother. 2011 Mar;39(2):123-31. doi: 10.1024/1422-4917/a000098.
7
Measuring health and well-being effects in family caregivers of children with craniofacial malformations.测量颅面畸形儿童家庭照顾者的健康和幸福感影响。
Qual Life Res. 2011 Nov;20(9):1487-95. doi: 10.1007/s11136-011-9870-2. Epub 2011 Feb 24.
8
Progress in understanding autism: 2007-2010.自闭症研究进展：2007-2010 年。
J Autism Dev Disord. 2011 Apr;41(4):395-404. doi: 10.1007/s10803-011-1184-2.
9
Patient-reported Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric patients with attention-deficit/hyperactivity disorder and comorbid psychiatric disorders: feasibility, reliability, and validity.患儿报告的儿科生活质量量表 4.0 通用核心量表在伴有共患精神障碍的注意缺陷/多动障碍患儿中的应用：可行性、信度和效度。
Value Health. 2011 Jun;14(4):521-30. doi: 10.1016/j.jval.2010.10.031. Epub 2011 Apr 22.
10
Quality of life in adolescents with autism spectrum disorders: reliability and validity of self-reports.自闭症谱系障碍青少年的生活质量：自我报告的信度和效度。
J Dev Behav Pediatr. 2011 Feb-Mar;32(2):85-9. doi: 10.1097/DBP.0b013e318203e558.
Zotero 插件