Department of Acute and Tertiary Care, University of Pittsburgh School of Nursing, Pittsburgh, PA 15261, USA.
Clin Transplant. 2013 Jan-Feb;27(1):113-20. doi: 10.1111/ctr.12017. Epub 2012 Sep 24.
Self-care behaviors are crucial for following the complex regimen after lung transplantation, yet little is known about recipients' levels of self-care agency (the capability and willingness to engage in self-care behaviors) and its correlates. We examined levels of self-care agency and recipient characteristics (socio-demographics, psychological distress, quality of relationship with primary lay caregiver, and health locus of control) in 111 recipients. Based on Perceived Self-Care Agency scores, recipients were assigned to either the low- or high-self-care agency comparison group. Characteristics were compared between groups to identify characteristics likely to be associated with lower-self-care agency. Mean (SD) score for self-care agency (scale range, 53-265) was 223.02 (22.46). Recipients with lowest-self-care agency scores reported significantly poorer quality of caregiver relationships (p < 0.001) and greater psychological distress (p < 0.001). After controlling for psychological distress, the quality of the recipient-caregiver relationship remained significantly associated with self-care agency. Every one-point decrease in the quality of caregiver relationship increased the risk of low-self-care agency by 12%. Recipients with poorer caregiver relationships and greater psychological distress may need additional support to perform the self-care behaviors expected after lung transplantation.
自我护理行为对于遵循肺移植后的复杂治疗方案至关重要，但对于受者自我护理能力（参与自我护理行为的能力和意愿）及其相关因素知之甚少。我们研究了 111 名受者的自我护理能力水平和受者特征（社会人口统计学、心理困扰、与主要非专业照护者的关系质量和健康控制源）。根据感知自我护理能力评分，将受者分为低自我护理能力或高自我护理能力比较组。比较组间的特征，以确定与低自我护理能力相关的特征。自我护理能力的平均（SD）评分（范围为 53-265）为 223.02（22.46）。自我护理能力最低得分的受者报告的照护者关系质量显著更差（p<0.001）和心理困扰更大（p<0.001）。在控制心理困扰后，受者-照护者关系的质量仍然与自我护理能力显著相关。照护者关系质量每下降一个点，自我护理能力低的风险就会增加 12%。与照护者关系较差和心理困扰较大的受者可能需要额外的支持来进行肺移植后预期的自我护理行为。
