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推进癌症患者导航议程:了解志愿者和同伴导航方法。

Moving the agenda forward for cancer patient navigation: understanding volunteer and peer navigation approaches.

作者信息

Lorhan Shaun, Cleghorn Laura, Fitch Margaret, Pang Kittie, McAndrew Alison, Applin-Poole Judy, Ledwell Elaine, Mitchell Roxanne, Wright Michelle

机构信息

BC Cancer Agency, Vancouver Island Centre, Victoria, BC, Canada.

出版信息

J Cancer Educ. 2013 Mar;28(1):84-91. doi: 10.1007/s13187-012-0424-2.

DOI:10.1007/s13187-012-0424-2
PMID:23104142
Abstract

Across Canada, individuals diagnosed with cancer have identified concerns about access to services before, during, and following treatment, highlighting a very real uncertainty that exists about where to turn for information and assistance. Cancer patient navigation programs are emerging as effective interventions, well-equipped to meet these patients' diverse needs. While many provinces have initiated professionally led navigation services, little is known about the potential for volunteer-led navigation. This article highlights pilot programs in British Columbia, Ontario, and Newfoundland, where volunteers are engaged as lay or peer providers of cancer patient navigation services. By describing the recruitment, training, and role of the navigators within each program, the paper underscores the capacity for unique programs to work within current care frameworks across distinct communities. These programs provide an innovative approach to overcoming barriers and augmenting access to supportive care for cancer patients and their family members.

摘要

在加拿大全国,被诊断患有癌症的个人表示,他们在治疗前、治疗期间和治疗后都担心能否获得相关服务,这凸显了在何处获取信息和寻求帮助方面存在的切实不确定性。癌症患者导航项目正成为有效的干预措施,能够很好地满足这些患者的多样化需求。虽然许多省份已启动由专业人员主导的导航服务,但对于由志愿者主导的导航服务的潜力却知之甚少。本文重点介绍了不列颠哥伦比亚省、安大略省和纽芬兰的试点项目,在这些项目中,志愿者作为癌症患者导航服务的非专业或同伴提供者参与其中。通过描述每个项目中导航员的招募、培训和角色,本文强调了独特项目在不同社区的现有护理框架内开展工作的能力。这些项目提供了一种创新方法,以克服障碍并增加癌症患者及其家庭成员获得支持性护理的机会。

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本文引用的文献

1
Metrics for evaluating patient navigation during cancer diagnosis and treatment: crafting a policy-relevant research agenda for patient navigation in cancer care.用于评估癌症诊断和治疗期间患者导航的指标:制定癌症护理中患者导航的相关政策研究议程。
Cancer. 2011 Aug;117(15 Suppl):3565-74. doi: 10.1002/cncr.26269.
2
The role of patient navigators in eliminating health disparities.患者导航员在消除健康差异中的作用。
Cancer. 2011 Aug;117(15 Suppl):3543-52. doi: 10.1002/cncr.26264.
3
Training experiences of lay and professional patient navigators for colorectal cancer screening.
关于第三部门组织志愿者支持的医院到家庭过渡的证据综合:范围综述方案。
BMJ Open. 2021 Jul 5;11(7):e050479. doi: 10.1136/bmjopen-2021-050479.
4
A mixed-method evaluation of a volunteer navigation intervention for older persons living with chronic illness (Nav-CARE): findings from a knowledge translation study.一项针对慢性病老年患者志愿者导航干预措施(Nav-CARE)的混合方法评价:一项知识转化研究的结果。
BMC Palliat Care. 2020 Oct 15;19(1):159. doi: 10.1186/s12904-020-00666-2.
5
What are patient navigators doing, for whom, and where? A national survey evaluating the types of services provided by patient navigators.患者导航员在做什么、为谁服务以及在哪里服务?一项评估患者导航员所提供服务类型的全国性调查。
Patient Educ Couns. 2018 Feb;101(2):285-294. doi: 10.1016/j.pec.2017.08.017. Epub 2017 Aug 31.
6
Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care.志愿者导航伙伴关系:探索早期姑息治疗的富有同情心的社区方法。
BMC Palliat Care. 2017 Jul 3;17(1):2. doi: 10.1186/s12904-017-0210-3.
7
Analysis of nurse navigators' activities for hospital discharge coordination: a mixed method study for the case of cancer patients.护士导航员在医院出院协调中的活动分析:一项针对癌症患者的混合方法研究。
Support Care Cancer. 2017 Mar;25(3):863-868. doi: 10.1007/s00520-016-3474-x. Epub 2016 Nov 9.
8
ColoNav: patient navigation for colorectal cancer screening in deprived areas - Study protocol.ColoNav:贫困地区结直肠癌筛查的患者导航——研究方案
BMC Cancer. 2016 Jul 7;16:416. doi: 10.1186/s12885-016-2469-9.
9
An assessment of patient navigator activities in breast cancer patient navigation programs using a nine-principle framework.利用九原则框架评估乳腺癌患者导航计划中的患者导航员活动。
Health Serv Res. 2014 Oct;49(5):1555-77. doi: 10.1111/1475-6773.12184. Epub 2014 May 13.
10
The development and implementation of a volunteer lay navigation competency framework at an outpatient cancer center.门诊癌症中心志愿者非专业导航能力框架的制定与实施。
Support Care Cancer. 2014 Sep;22(9):2571-80. doi: 10.1007/s00520-014-2238-8. Epub 2014 Apr 18.
非专业和专业患者导航员在结直肠癌筛查方面的培训经历。
J Cancer Educ. 2011 Jun;26(2):277-84. doi: 10.1007/s13187-010-0185-8.
4
Ten steps in training volunteer support group facilitators.培训志愿者支持小组协调员的十个步骤。
Am J Alzheimers Dis Other Demen. 2010 Nov;25(7):562-5. doi: 10.1177/1533317510382288.
5
Results from the national hospice volunteer training survey.全国临终关怀志愿者培训调查结果。
J Palliat Med. 2010 Mar;13(3):261-5. doi: 10.1089/jpm.2009.0240.
6
Trained volunteer-delivered mental health support to those bereaved by Asian tsunami--an evaluation.训练有素的志愿者为亚洲海啸遇难者家属提供心理健康支持——一项评估。
Int J Soc Psychiatry. 2008 Jul;54(4):293-302. doi: 10.1177/0020764008090283.
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Some common problems faced by hospice palliative care volunteers.临终关怀志愿者面临的一些常见问题。
Am J Hosp Palliat Care. 2008 Apr-May;25(2):121-6. doi: 10.1177/1049909107312593.
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Why patients with lung cancer do not want help with some needs.为什么肺癌患者在某些需求方面不希望得到帮助。
Support Care Cancer. 2008 Mar;16(3):251-9. doi: 10.1007/s00520-007-0301-4. Epub 2007 Jun 30.
9
Lay patient navigator program implementation for equal access to cancer care and clinical trials: essential steps and initial challenges.为实现癌症护理和临床试验的平等可及性而实施的患者导航员项目:关键步骤和初期挑战
Cancer. 2006 Dec 1;107(11):2669-77. doi: 10.1002/cncr.22319.
10
Patient navigation: a community centered approach to reducing cancer mortality.患者导航:一种以社区为中心降低癌症死亡率的方法。
J Cancer Educ. 2006 Spring;21(1 Suppl):S11-4. doi: 10.1207/s15430154jce2101s_4.