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肺癌患者在门诊癌症中心接受基于志愿者的非专业导航干预的体验。

The experience of people with lung cancer with a volunteer-based lay navigation intervention at an outpatient cancer center.

作者信息

Lorhan Shaun, Dennis Darcy, van der Westhuizen Michael, Hodgson Sally, Berrang Tanya, Daudt Helena

机构信息

BC Cancer Agency, Victoria, Canada.

BC Cancer Agency, Victoria, Canada.

出版信息

Patient Educ Couns. 2014 Aug;96(2):237-48. doi: 10.1016/j.pec.2014.05.002. Epub 2014 May 9.

DOI:10.1016/j.pec.2014.05.002
PMID:24862912
Abstract

OBJECTIVE

To describe the experiences of patients with lung cancer with a volunteer-based lay navigation intervention.

METHODS

Forty patients with newly diagnosed lung cancer enrolled in a three-step navigation intervention delivered by trained volunteer lay navigators (VLNs), beginning prior to their first oncologist's appointment and ending before the start of treatment. Methodological triangulation of data was used in a mixed method study design. Cases were categorized based on the predominant needs met by the VLN: emotional, practical/informational, family, and complex. Data were analyzed using framework analysis.

RESULTS

The provision of emotional support, information, and referrals to other services by the VLN were of particular benefit to the patient and their families. Satisfaction with the program and its timing was high; it was considered an effective means for patients to share concerns and have their needs attended to before starting treatment.

CONCLUSION

This study demonstrates capacity for lay volunteers to address the multifaceted needs of lung cancer patients during their transition from primary care in the diagnosis to treatment phase.

PRACTICE IMPLICATIONS

Using volunteers as navigators offers an opportunity to meet patient needs with minimal resources, increase access to services for patients, and improve the sustainability of the program.

摘要

目的

描述肺癌患者参与基于志愿者的非专业导航干预的经历。

方法

40例新诊断的肺癌患者参加了由经过培训的志愿者非专业导航员(VLN)提供的三步导航干预,干预从他们首次预约肿瘤学家之前开始,在治疗开始前结束。在混合方法研究设计中使用了数据的方法三角测量法。根据VLN满足的主要需求将病例分类为:情感需求、实际/信息需求、家庭需求和复杂需求。使用框架分析法对数据进行分析。

结果

VLN提供的情感支持、信息以及转介到其他服务对患者及其家人特别有益。对该项目及其时机的满意度很高;它被认为是患者在开始治疗前分享担忧并使需求得到关注的有效方式。

结论

本研究表明非专业志愿者有能力在肺癌患者从诊断时的初级护理过渡到治疗阶段期间满足其多方面需求。

实践意义

将志愿者用作导航员提供了一个以最少资源满足患者需求、增加患者获得服务的机会并提高项目可持续性的契机。

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