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为感染艾滋病毒的年轻人提供心理社会支持:来自现场的声音。

Provision of psychosocial support for young people living with HIV: voices from the field.

机构信息

One Love Project at Next Step.

出版信息

SAHARA J. 2011;8(1):33-41. doi: 10.1080/17290376.2011.9724982.

DOI:10.1080/17290376.2011.9724982
PMID:23237644
Abstract

This review provides a synthesis of the experiences of organisations providing psychosocial support for young people living with HIV (YPLHIV) from throughout the world. Little research exists on psychosocial support for YPLHIV, with many providers uncertain about how to address their complex needs. Eighty-six organisations were sent a survey containing 15 semi-structured, open-ended questions. Sixty-eight organisations from the United States, Europe, Africa, Asia, Latin America and the Middle East responded. The survey asked what challenges the organisation's patient group face; what the organisational aims are; how, where and by whom psychosocial support is delivered; what types of psychosocial support have been effective and which have not; and what recommendations the organisation has for service provision and policy. Data were stratified by age of population, region of the world and whether youth were infected at birth or in adolescence. The problems and needs across groups were more consistent than disparate. Adherence to medication, disclosure of HIV status, issues relating to sex and lack of support networks are problems faced by all YPLHIV. Most organisations use a multi-disciplinary team of individuals to meet these needs, with particular emphasis on individual and group therapy, educational support, and skills-building programmes. The review stresses the importance of youth-centered and youth-led approaches that engage young people in the planning, implementation and evaluation of programmes. Organisations underlined the need for increased funding, capacity building and trained staff. They suggest that policy makers put more effort into understanding the distinctiveness of adolescence, particularly in the context of HIV, and challenge them to make longer-term commitments to funding and programme support. In order for organisations to provide better services, they need further evidence of effective solutions, programme guidance and support tools, and increased collaboration and communication with one another, and with policy-makers and donors.

摘要

这篇综述综合了世界各地为感染艾滋病毒的青年(YPLHIV)提供心理社会支持的组织的经验。针对 YPLHIV 的心理社会支持研究甚少,许多提供者不确定如何满足他们的复杂需求。向 86 个组织发送了一份包含 15 个半结构化、开放式问题的调查。来自美国、欧洲、非洲、亚洲、拉丁美洲和中东的 68 个组织作出了回应。调查询问组织的患者群体面临哪些挑战;组织的目标是什么;心理社会支持是如何、在哪里以及由谁提供的;哪些类型的心理社会支持是有效的,哪些是无效的;以及该组织对服务提供和政策有哪些建议。数据按人口年龄、世界区域以及青年是出生时感染还是青春期感染进行分层。各群体的问题和需求比差异更一致。坚持用药、披露艾滋病毒状况、与性有关的问题以及缺乏支持网络是所有 YPLHIV 面临的问题。大多数组织使用多学科团队的个人来满足这些需求,特别强调个体和小组治疗、教育支持和技能建设方案。该综述强调了以青年为中心和以青年为主导的方法的重要性,让年轻人参与规划、实施和评估方案。各组织强调需要增加资金、能力建设和培训人员。他们建议政策制定者更加努力地了解青春期的独特性,特别是在艾滋病毒方面,并要求他们对供资和方案支持作出更长期的承诺。为了使组织能够提供更好的服务,他们需要更多有效的解决方案、方案指导和支持工具的证据,并加强彼此之间以及与政策制定者和捐助者的合作和沟通。

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