Diyoka Chadrack Kabeya, Kaj Fanny Malonga, Mwanvua Laetitia Ngongo, Mukanya Michael Mika, Bukasa Patrick Kazadi, Lambo Ghyslain Ngongo, Mjumbe Criss Koba
Master of Science in Public Health, Option Management of Health Systems and Services, School of Public Health, University of Lubumbashi, Lubumbashi, Democratic Republic of Congo.
Department of Gynaecology and Obstetrics, Faculty of Medicine, University of Lubumbashi, Lubumbashi, Democratic Republic of Congo.
Clinicoecon Outcomes Res. 2025 Aug 22;17:547-559. doi: 10.2147/CEOR.S526529. eCollection 2025.
To determine the challenges requiring psychosocial and economic support faced by children living with HIV, to describe the interventions in place and to explore the experience of professionals providing services in a health district in the city of Lubumbashi in the DRC.
A descriptive case study using the phenomenological qualitative approach was conducted in the Katuba health district. Over the course of eight months (June 1, 2024 - February 8, 2025), with data collection from July 1 and August 1, 2024. HIV focal points participated in in-depth, semi-structured interviews, and case managers participated in focus groups. ATLAS.ti (version 12) was used to conduct the thematic analysis.
On average, the participants had 15.5 ± 11.43 years of experience, and 50% were senior nurses. The average age of the sample was 44.21 ± 9.40 years, and 57% of participants were female. Significant obstacles included the daily stresses of therapy, difficulties with adherence (especially when symptoms were not obvious), and experiences of discrimination, stigma, and exclusion within families, schools, and wider society. These issues adversely impacted education, work, and interpersonal connections. Children people also experienced financial difficulties, limited access to job opportunities and vocational training, and anxiety about an uncertain future. While psychosocial support was universally accepted, economic assistance was considered only partially beneficial due to funding delays and resource limitations. The recommendations focused on increasing government financing, improving access to medical and emotional support services, raising awareness of prevention measures, and strengthening human and material resources.
This research highlights the challenges faced by children living with HIV and underlines the importance of early identification and effective management of these problems to improve their quality of life. Current interventions are deemed effective, but could be improved by strengthening the support system, particularly in terms of human and organisational resources.
确定感染艾滋病毒儿童所面临的需要心理社会和经济支持的挑战，描述现有的干预措施，并探索在刚果民主共和国卢本巴希市一个卫生区提供服务的专业人员的经验。
在卡图巴卫生区采用现象学定性方法进行描述性案例研究。在八个月（2024年6月1日至2025年2月8日）期间，于2024年7月1日和8月1日收集数据。艾滋病毒协调人参与了深入的半结构化访谈，病例管理人员参与了焦点小组。使用ATLAS.ti（版本12）进行主题分析。
参与者平均有15.5±11.43年的工作经验，50%为高级护士。样本的平均年龄为44.21±9.40岁，57%的参与者为女性。重大障碍包括治疗的日常压力、坚持治疗的困难（尤其是症状不明显时），以及在家庭、学校和更广泛社会中遭受歧视、耻辱和排斥的经历。这些问题对教育、工作和人际关系产生了不利影响。儿童还经历了经济困难、获得工作机会和职业培训的机会有限，以及对不确定未来的焦虑。虽然心理社会支持得到普遍认可，但由于资金延迟和资源限制，经济援助被认为只具有部分益处。建议集中在增加政府资金、改善获得医疗和情感支持服务的机会、提高对预防措施的认识，以及加强人力和物力资源。
本研究突出了感染艾滋病毒儿童所面临的挑战，并强调了早期识别和有效管理这些问题对改善其生活质量的重要性。目前的干预措施被认为是有效的，但可以通过加强支持系统，特别是在人力和组织资源方面加以改进。
