Trusko B, Thorne J, Jabs D, Belfort R, Dick A, Gangaputra S, Nussenblatt R, Okada A, Rosenbaum J
Mount Sinai School of Medicine, Ophthalmology, One Gustave L Levy Place, Box 1183, New York, NY10029-6574, USA.
Methods Inf Med. 2013;52(3):259-65, S1-6. doi: 10.3414/ME12-01-0063. Epub 2013 Feb 8.
Given the recent increased focus on evidence-based medicine, it is critical that diseases and syndromes have accurate and complete descriptions, including standardized and widely accepted terminologies. Standardizing these descriptions and terminologies is necessary to develop tools such as computerized data entry forms and classification criteria. This need is especially true for diseases that are relatively uncommon, such as uveitis.
To develop a standardized and internationally accepted terminology for the field of uveitis.
The Standardization of Uveitis Nomenclature (SUN) Working Group (WG) is an international group of 79 uveitis experts from 18 countries and 62 clinical centers. Initial terminology was developed utilizing a "modified" green field approach, which was enhanced through web-based surveys and teleconferences via a "modified" Delphi technique. Terms were mapped provisionally into ontologic dimensions for each syndrome. The Working Group then met and utilized nominal group techniques as a formalized method of finalizing the mappings.
Mapping of terms into dimensions to describe 28 major uveitic diseases was confirmed using nominal group techniques (achieving super-majority consensus) for each of the diseases at a meeting of the entire WG.
The SUN WG utilized an informatics-based approach to develop a standardized and internationally accepted terminology for the uveitides.
鉴于近期对循证医学的关注度增加，疾病和综合征拥有准确且完整的描述至关重要，包括标准化且被广泛接受的术语。对这些描述和术语进行标准化，对于开发诸如计算机化数据录入表单和分类标准等工具而言是必要的。对于葡萄膜炎这类相对罕见的疾病，这种需求尤为迫切。
为葡萄膜炎领域制定一个标准化且国际认可的术语。
葡萄膜炎命名标准化（SUN）工作组（WG）是一个由来自18个国家和62个临床中心的79位葡萄膜炎专家组成的国际团队。最初的术语是采用“改良”的全新方法制定的，通过基于网络的调查以及采用“改良”德尔菲技术的电话会议对其进行了完善。术语被临时映射到每个综合征的本体维度。然后工作组开会并采用名义群体技术作为确定映射的正式方法。
在整个工作组的一次会议上，使用名义群体技术（达成绝大多数共识）确认了将术语映射到维度以描述28种主要葡萄膜炎疾病的情况。
SUN工作组采用基于信息学的方法为葡萄膜炎制定了一个标准化且国际认可的术语。
