Issel L M, Ersek M, Lewis F M
Oncol Nurs Forum. 1990 May-Jun;17(3 Suppl):5-12; discussion 12-3.
Few studies have focused on the child of a parent with cancer. Family systems and cognitive development theories suggest that the mother's illness affects the children and that families take action to help them. This study describes the ways in which school-age children cope with the mother's breast cancer and the ways in which their families help them cope. The results are based on semistructured interviews with 81 children 6-20 years old whose mothers had been diagnosed with breast cancer within the past two-and-a-half years. Interviews were tape-recorded, transcribed, and content analyzed. Eighty-four percent agreement on interrater reliability was achieved using three independent trained coders. Children and families used four types of strategies: acted as though they were in her shoes, carried on business as usual, tapped into group energy, and put her illness on the table. Parents, other family members, the children's friends, and adult friends helped the children. The results suggest ways that clinicians can understand the effect of the mother's breast cancer from the child's perspective and thus facilitate both the child's coping and the family's attempts to help the children.
很少有研究关注患癌父母的子女。家庭系统和认知发展理论表明，母亲的疾病会影响子女，并且家庭会采取行动帮助他们。本研究描述了学龄儿童应对母亲乳腺癌的方式以及他们的家庭帮助他们应对的方式。研究结果基于对81名6至20岁儿童的半结构化访谈，这些儿童的母亲在过去两年半内被诊断出患有乳腺癌。访谈进行了录音、转录和内容分析。通过三名独立训练的编码员，评定者间信度达成了84%的一致性。儿童和家庭使用了四种策略：设身处地为她着想、一切照旧、借助群体力量、直面她的疾病。父母、其他家庭成员、孩子的朋友和成年朋友都帮助了孩子。研究结果为临床医生提供了一些方法，使他们能够从孩子的角度理解母亲乳腺癌的影响，从而促进孩子的应对以及家庭帮助孩子的努力。
