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姑息性镇静与安乐死:伦理评估。

Palliative sedation versus euthanasia: an ethical assessment.

作者信息

ten Have Henk, Welie Jos V M

机构信息

Center for Healthcare Ethics, Duquesne University, Pittsburgh, Pennsylvania, USA.

Center for Health Policy and Ethics, Creighton University, Omaha, Nebraska, USA.

出版信息

J Pain Symptom Manage. 2014 Jan;47(1):123-36. doi: 10.1016/j.jpainsymman.2013.03.008. Epub 2013 Jun 4.

Abstract

The aim of this article was to review the ethical debate concerning palliative sedation. Although recent guidelines articulate the differences between palliative sedation and euthanasia, the ethical controversies remain. The dominant view is that euthanasia and palliative sedation are morally distinct practices. However, ambiguous moral experiences and considerable practice variation call this view into question. When heterogeneous sedative practices are all labeled as palliative sedation, there is the risk that palliative sedation is expanded to include practices that are actually intended to bring about the patients' death. This troublesome expansion is fostered by an expansive use of the concept of intention such that this decisive ethical concept is no longer restricted to signify the aim in guiding the action. In this article, it is argued that intention should be used in a restricted way. The significance of intention is related to other ethical parameters to demarcate the practice of palliative sedation: terminality, refractory symptoms, proportionality, and separation from other end-of-life decisions. These additional parameters, although not without ethical and practical problems, together formulate a framework to ethically distinguish a more narrowly defined practice of palliative sedation from practices that are tantamount to euthanasia. Finally, the article raises the question as to what impact palliative sedation might have on the practice of palliative care itself. The increasing interest in palliative sedation may reemphasize characteristics of health care that initially encouraged the emergence of palliative care in the first place: the focus on therapy rather than care, the physical dimension rather than the whole person, the individual rather than the community, and the primacy of intervention rather than receptiveness and presence.

摘要

本文旨在回顾关于姑息性镇静的伦理辩论。尽管近期的指南明确了姑息性镇静与安乐死之间的区别,但伦理争议依然存在。主流观点认为,安乐死和姑息性镇静在道德上是不同的做法。然而,模糊的道德体验和显著的实践差异对这一观点提出了质疑。当各种不同的镇静做法都被贴上姑息性镇静的标签时,就存在将姑息性镇静扩大到包括实际上旨在导致患者死亡的做法的风险。对意图概念的宽泛使用助长了这种麻烦的扩展,以至于这个决定性的伦理概念不再局限于表示指导行动的目的。在本文中,有人认为应该以一种受限的方式使用意图。意图的重要性与其他伦理参数相关,以界定姑息性镇静的实践:终末期、难治性症状、相称性以及与其他临终决定的区分。这些额外的参数虽然并非没有伦理和实际问题,但共同构成了一个框架,以便从等同于安乐死的做法中在伦理上区分出定义更狭窄的姑息性镇静实践。最后,本文提出了一个问题,即姑息性镇静可能会对姑息治疗本身的实践产生什么影响。对姑息性镇静日益增长的兴趣可能会再次强调最初促使姑息治疗出现的医疗保健的特征:关注治疗而非护理、关注身体层面而非整个人、关注个体而非社区,以及干预的首要地位而非接受和陪伴。

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