生活在土耳其的不同残疾儿童在健康相关生活质量、自我护理及社会功能方面是否存在差异？
Is There any Difference in Health Related Quality of Life, Self Care and Social Function in Children with Different Disabilities Living in Turkey?
作者信息
Elbasan Bulent, Duzgun Irem, Oskay Deran
机构信息
Department of Physiotherapy and Rehabilitation, Faculty of Health Sciences, Gazi University, Turkey.
出版信息
Iran J Pediatr. 2013 Jun;23(3):281-8.
OBJECTIVE
The aim of this study was to examine the differences in the health related quality of life and the self care and social function in daily life of children with different disabilities.
METHODS
One hundred and two children with physical, emotional and cognitive disabilities (cerebral palsy, mental retardation, and hearing loss) and 28 children age matched as a control group were included in this study for the comparison. The Pediatric Evaluation of Disability Inventory (PEDI) was used to evaluate the independence and participation of children in daily life activities. The Turkish version of the Child Health Questionnaire-Parent form (CHQ - PF50) was used to evaluate the health related quality of life.
FINDINGS
All 3 groups were different from the control group in terms of self-care and the social domains according to the PEDI results (P<0.05). Children with cerebral palsy (CP) were more dependent in the areas of self-care and mobility activities (P<0.05). The main difference was found in global general health (GGH), physical functioning (PF), the emotional impact on the parent (PE) subsections of the CHQ-PF50 between the CP and the hearing loss groups; the role of the physical (RP) and emotional behavior (BE) subsections between the mental retardation (MR) and the CP groups, and the BE and mental health (MH) subsections between the MR and the hearing loss (HL) groups (P<0.05).
CONCLUSION
All the children with disabilities were different from the control group in their quality of life, self care and social function. However the status of the children with MR and HL were parallel between each other in their health related quality of life, self care and social function. On the other hand, the most affected and dependent group was children with CP. The results will provide guidelines for healthcare professionals in implementing effective rehabilitation programs, especially to those with cerebral palsy, to reduce the level of strain and increase the health related quality of life, self care and social function of children with different disabilities.
目的
本研究旨在探讨不同残疾儿童在与健康相关的生活质量、日常生活中的自我护理及社会功能方面的差异。
方法
本研究纳入了102名患有身体、情感和认知残疾（脑瘫、智力障碍和听力损失）的儿童，并选取28名年龄匹配的儿童作为对照组进行比较。使用儿童残疾评定量表（PEDI）评估儿童在日常生活活动中的独立性和参与度。使用儿童健康问卷家长版土耳其语版本（CHQ - PF50）评估与健康相关的生活质量。
结果
根据PEDI结果，所有3个残疾组在自我护理和社会领域方面均与对照组不同（P<0.05）。脑瘫儿童在自我护理和移动活动方面依赖性更强（P<0.05）。在CHQ - PF50的总体健康（GGH）、身体功能（PF）、对家长的情感影响（PE）子项目上，脑瘫组和听力损失组之间存在主要差异；在身体角色（RP）和情感行为（BE）子项目上，智力障碍组和脑瘫组之间存在差异；在BE和心理健康（MH）子项目上，智力障碍组和听力损失组之间存在差异（P<0.05）。
结论
所有残疾儿童在生活质量、自我护理和社会功能方面均与对照组不同。然而，智力障碍儿童和听力损失儿童在与健康相关的生活质量、自我护理和社会功能方面状况彼此相似。另一方面，受影响最大且依赖性最强的群体是脑瘫儿童。这些结果将为医疗保健专业人员实施有效的康复计划提供指导，尤其是针对脑瘫儿童，以减轻压力水平，提高不同残疾儿童的与健康相关的生活质量、自我护理和社会功能。
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