Faculty of Psychology and Educational Sciences, University of Coimbra, Coimbra, Portugal.
Int J Psychol. 2013;48(5):729-46. doi: 10.1080/00207594.2013.806811. Epub 2013 Jul 15.
This paper is a systematic review of 39 empirical studies on family routines and rituals in the context of a chronic condition of a family member. The search strategy encompassed a wide spectrum of chronic conditions affecting family members from childhood/adolescence to adulthood. Twenty quantitative, 13 qualitative, 3 mixed-methods, and 3 intervention studies published between 1995 and 2012 were reviewed. A conceptual framework of routines and rituals as key elements of family health was adopted, resulting in three main findings. First, a chronic condition in a family member impacted the frequency and nature of family's routines and rituals. Second, these whole-family interactions held important functions for individuals and families, constituting strategic resources in the condition's management and opportunities for emotional support exchanges, and providing the family with a sense of normalcy amid the challenges posed by chronic conditions. Third, family routines and rituals were linked to positive health and adaptation outcomes for both patients and family members. Implications for future research include the need for the distinction between routines and rituals against a conceptual background, use of validated assessment methods, and empirical examination of predictors of changes in routines and rituals throughout the course of the condition and of the mechanisms linking these family events to positive outcomes. Conclusions support the inclusion of routines and rituals in a family-centered care approach to the understanding and treatment of chronic conditions.
这是一篇对 39 项关于家庭成员慢性病背景下家庭常规和仪式的实证研究的系统评价。搜索策略涵盖了从儿童/青少年到成年期影响家庭成员的各种慢性疾病。本研究回顾了 1995 年至 2012 年间发表的 20 项定量研究、13 项定性研究、3 项混合方法研究和 3 项干预研究。采用常规和仪式作为家庭健康关键要素的概念框架,得出了三个主要发现。首先,家庭成员的慢性病会影响家庭常规和仪式的频率和性质。其次,这些全家庭互动对个人和家庭具有重要功能,构成了疾病管理的战略资源和情感支持交流的机会,并为家庭在慢性病带来的挑战中提供了一种常态感。第三,家庭常规和仪式与患者和家庭成员的健康和适应结果呈正相关。对未来研究的启示包括需要在概念背景下区分常规和仪式,使用经过验证的评估方法,并实证检验整个疾病过程中常规和仪式变化的预测因素,以及将这些家庭事件与积极结果联系起来的机制。结论支持将常规和仪式纳入以家庭为中心的慢性病护理方法,以理解和治疗慢性病。