Presotto Rodrigo Fernando, Silveira Marília, Delgado Pedro Gabriel Godinho, Vasconcelos Eduardo Mourão
Cien Saude Colet. 2013 Oct;18(10):2837-45. doi: 10.1590/s1413-81232013001000008.
In this paper the authors describe and contextualize the participation of users and family members in mental health research in Brazil, addressing the recent tradition of the experiences of recovery and empowerment to define the analysis of some Brazilian experiences of evaluative research and intervention projects, which count on these social actors to act as researchers. The experiences of Self-Help Groups and the Guide to Autonomous Medication Management are described briefly, in order to analyze the limits and possibilities of participation of users and their family members in research, which is still incipient and sporadic in the Brazilian reality. The authors also recommend the creation of an agenda in public health policy that encourages this participation.
在本文中，作者描述并阐述了巴西用户和家庭成员参与心理健康研究的情况，探讨了近期康复与赋权经验的传统，以此来界定对巴西一些评估研究和干预项目经验的分析，这些项目依靠这些社会行为者作为研究者。文中简要介绍了自助团体的经验以及自主药物管理指南，以便分析用户及其家庭成员参与研究的局限性和可能性，而这在巴西现实中仍处于起步且零散的阶段。作者还建议制定一项公共卫生政策议程，以鼓励这种参与。
