Passos Eduardo, Otanari Thais Mikie de Carvalho, Emerich Bruno Ferrari, Guerini Lorena
Cien Saude Colet. 2013 Oct;18(10):2919-28. doi: 10.1590/s1413-81232013001000016.
The theme of users' rights has become a central issue in contemporary debate on mental health. Drawing from the experiences of "Comitê Cidadão" (Citizen Committee), consisting of users and family members in an international research alliance between Brazil and Canada, an attempt is made to discuss the effects of the experience of co-management of the so-called Autonomous Medication Administration (GAM - Gestão Autônoma da Medicação) participatory research project on these individuals. By means of a detailed description of the background of the Committee and interviews and analysis of the voice transcriptions of its members, the problems raised by the relation of dialogue between scientific knowledge and users' knowledge are examined in a methodological approach of participatory research. As a result of the research, it was established that the experience of the Citizens Committee in co-management of health research can be propitious to the increase in the degree of autonomy, greater empowerment and the exercise of leadership and citizenship, with the consequent emergence of subjects with rights.
用户权利主题已成为当代心理健康辩论中的核心问题。借鉴由巴西和加拿大国际研究联盟中的用户及家庭成员组成的“公民委员会”的经验，本文尝试探讨所谓自主药物管理（GAM - Gestão Autônoma da Medicação）参与式研究项目的共同管理经验对这些个体的影响。通过详细描述委员会的背景以及对其成员的访谈和语音转录分析，采用参与式研究方法审视科学知识与用户知识之间对话关系所引发的问题。研究结果表明，公民委员会在健康研究共同管理方面的经验有利于提高自主性程度、增强赋权以及行使领导力和公民权，从而产生拥有权利的主体。
