Alba-Ruiz Ruben, Bermúdez-Tamayo Clara, Pernett Jaime Jiménez, Garcia-Gutierrez Jose Francisco, Cózar-Olmo José Manuel, Valero-Aguilera Beatriz
1 Investigation Support Unit, Our Lady of the Snows University Hospital , Granada, Spain .
Telemed J E Health. 2013 Dec;19(12):956-66. doi: 10.1089/tmj.2013.0050. Epub 2013 Sep 27.
People who use the Internet to research health topics do not usually find all the information they need and do not trust what they read. This study was designed to assess the reliability, accessibility, readability, and popularity of cancer Web sites in Spanish and to analyze the suitability of Web site content in accordance with the specific information needs of cancer patients.
This was a two-phase, cross-sectional, descriptive study. The first phase involved data gathering through online searches and direct observation. The second phase involved individual structured interviews with 169 patients with breast, prostate, bladder, and kidney cancer. Spearman rank correlations were calculated between variables.
Most sites belonged to nonprofit organizations, followed by universities or medical centers (14%). Thirty-one percent of the Web sites had quality seals, 59% provided details of authorship, 62% provided references to bibliographic sources, 38% identified their funding sources, and 54% showed the date of their last update. Twenty-one percent of the Web sites did not meet the minimum accessibility criteria. With regard to readability, 24% of the texts were considered to be "quite difficult." Patients' information needs vary depending on the type of cancer they have, although all patients want to know about the likelihood of a cure, survival rates, the side effects, and risks of treatment.
The health information on cancer available on the Internet in Spanish is not very reliable, accessible, or readable and is not necessarily the information that breast, kidney, prostate, and bladder cancer patients require. The content of cancer Web sites needs to be assessed according to the information needs of patients.
利用互联网搜索健康主题的人通常无法找到他们所需的全部信息，并且不信任他们所读到的内容。本研究旨在评估西班牙语癌症网站的可靠性、可访问性、可读性和受欢迎程度，并根据癌症患者的特定信息需求分析网站内容的适用性。
这是一项两阶段的横断面描述性研究。第一阶段通过在线搜索和直接观察收集数据。第二阶段对169名乳腺癌、前列腺癌、膀胱癌和肾癌患者进行了结构化个体访谈。计算变量之间的Spearman等级相关性。
大多数网站属于非营利组织，其次是大学或医疗中心（14%）。31%的网站有质量认证标志，59%提供了作者详细信息，62%提供了文献来源引用，38%指明了资金来源，54%显示了上次更新日期。21%的网站未达到最低可访问性标准。在可读性方面，24%的文本被认为“相当困难”。患者的信息需求因所患癌症类型而异，尽管所有患者都想了解治愈的可能性、生存率、副作用和治疗风险。
互联网上可用的西班牙语癌症健康信息不太可靠、难以访问和阅读，且不一定是乳腺癌、肾癌、前列腺癌和膀胱癌患者所需的信息。癌症网站的内容需要根据患者的信息需求进行评估。
