Georgia State University, United States.
Res Dev Disabil. 2013 Nov;34(11):4255-73. doi: 10.1016/j.ridd.2013.09.008. Epub 2013 Sep 28.
Having children with developmental disabilities (DDs) requires a high level of caregiving responsibilities, and existing studies support that mothers of children with DDs experience high levels of maternal stress as well as poor sleep and well-being. Given the fact that the number of children with DDs has increased, an up-to-date literature review is necessary to identify factors associated with maternal stress, sleep, and well-being. In addition, understanding these factors and their relationships may provide better strategies in designing effective interventions that can reduce the burden in mothers of children with DDs. This review summarized 28 scientific research papers that examined maternal stress, sleep, and well-being in mothers of children with DDs in past 12 years. The study findings indicate that mothers of children with DDs experience higher levels of stress than mothers of typically developing children, and it remains high over time. In addition, these mothers often encounter depressive symptoms as well as poor sleep quality. The study results also reveal that there is a bidirectional relationship between maternal stress and depressive symptoms as well as between poor sleep quality and depressive symptoms. For example, higher stress mothers experienced more depressive symptoms. Mothers of children with DDs with poor sleep quality are significantly associated with more depressive symptoms. Child behavior problems were significantly associated with both maternal stress and depressive symptoms, but cautious interpretation is warranted due to the shared variance between child behavior problems, maternal stress, and depressive symptoms. Methodological guidelines for future research involve the use of reliable and valid instruments for the measurement of child behavior problems, maternal stress, and sleep. Recommendations for future research are included.
养育患有发育障碍(DD)的孩子需要承担高度的照顾责任,现有研究表明,DD 患儿的母亲会经历高水平的母亲压力以及睡眠和健康状况不佳。鉴于患有 DD 的儿童数量增加,有必要对现有文献进行综述,以确定与母亲压力、睡眠和健康相关的因素。此外,了解这些因素及其关系可能为设计有效的干预措施提供更好的策略,以减轻 DD 患儿母亲的负担。本综述总结了过去 12 年中 28 篇科学研究论文,这些论文研究了 DD 患儿母亲的母亲压力、睡眠和健康。研究结果表明,DD 患儿的母亲比一般发育儿童的母亲经历更高水平的压力,而且随着时间的推移压力仍然很高。此外,这些母亲经常会出现抑郁症状和睡眠质量差。研究结果还表明,母亲压力和抑郁症状之间以及睡眠质量差和抑郁症状之间存在双向关系。例如,压力较高的母亲经历更多的抑郁症状。睡眠质量差的 DD 患儿母亲与更多的抑郁症状显著相关。儿童行为问题与母亲压力和抑郁症状均显著相关,但由于儿童行为问题、母亲压力和抑郁症状之间存在共同方差,因此需要谨慎解释。未来研究的方法学指南涉及使用可靠和有效的工具来测量儿童行为问题、母亲压力和睡眠。并提出了未来研究的建议。