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阿西洛马调查:利益相关者对脑机接口相关伦理问题的看法。

The Asilomar Survey: Stakeholders' Opinions on Ethical Issues Related to Brain-Computer Interfacing.

作者信息

Nijboer Femke, Clausen Jens, Allison Brendan Z, Haselager Pim

机构信息

Human Media Interaction, University of Twente, Enschede, the Netherlands.

出版信息

Neuroethics. 2013;6(3):541-578. doi: 10.1007/s12152-011-9132-6. Epub 2011 Aug 17.

Abstract

Brain-Computer Interface (BCI) research and (future) applications raise important ethical issues that need to be addressed to promote societal acceptance and adequate policies. Here we report on a survey we conducted among 145 BCI researchers at the 4 International BCI conference, which took place in May-June 2010 in Asilomar, California. We assessed respondents' opinions about a number of topics. First, we investigated preferences for terminology and definitions relating to BCIs. Second, we assessed respondents' expectations on the marketability of different BCI applications (BCIs for healthy people, BCIs for assistive technology, BCIs-controlled neuroprostheses and BCIs as therapy tools). Third, we investigated opinions about ethical issues related to BCI research for the development of assistive technology: informed consent process with locked-in patients, risk-benefit analyses, team responsibility, consequences of BCI on patients' and families' lives, liability and personal identity and interaction with the media. Finally, we asked respondents which issues are urgent in BCI research.

摘要

脑机接口(BCI)研究及(未来)应用引发了一些重要的伦理问题,为促进社会接受度及制定适当政策,这些问题需要得到解决。在此,我们报告一项于2010年5月至6月在加利福尼亚州阿西洛马举行的第4届国际BCI会议上,对145位BCI研究人员进行的调查。我们评估了受访者对多个主题的看法。首先,我们调查了他们对与BCI相关术语和定义的偏好。其次,我们评估了受访者对不同BCI应用(面向健康人的BCI、辅助技术用BCI、BCI控制的神经假体以及作为治疗工具的BCI)市场前景的期望。第三,我们调查了有关辅助技术开发中BCI研究伦理问题的看法:与闭锁综合征患者的知情同意过程、风险效益分析、团队责任、BCI对患者及其家庭生活的影响、责任、个人身份以及与媒体的互动。最后,我们询问受访者BCI研究中哪些问题最为紧迫。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3206/3825606/8158b8f87f4f/12152_2011_9132_Fig1_HTML.jpg

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