多发性硬化症与疲劳：了解患者需求
Multiple sclerosis and fatigue: understanding the patient's needs.
作者信息
Cook Karon F, Bamer Alyssa M, Roddey Toni S, Kraft George H, Kim Jiseon, Amtmann Dagmar
机构信息
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 625 North Michigan Avenue, Suite 2700, Chicago, IL 60611, USA.
出版信息
Phys Med Rehabil Clin N Am. 2013 Nov;24(4):653-61. doi: 10.1016/j.pmr.2013.06.006. Epub 2013 Sep 3.
Abstract
Fatigue is among the most common and debilitating symptoms of multiple sclerosis (MS), affecting approximately 80% of persons who have the disease. Recently, as part of the National Institutes of Health Patient Reported Outcome Measurement Information System (PROMIS), a bank of items was developed for measuring self-reported fatigue. This article has two purposes. (1) To assess, from the perspective of individuals living with MS, the relevance of a subset of items from the PROMIS fatigue item bank. (2) To identify additional aspects of fatigue that individuals with MS believe are important for clinicians when asking about their fatigue experience.
摘要
疲劳是多发性硬化症（MS）最常见且使人衰弱的症状之一，影响着约80%的该病患者。最近，作为美国国立卫生研究院患者报告结局测量信息系统（PROMIS）的一部分，开发了一组用于测量自我报告疲劳的条目。本文有两个目的。（1）从MS患者的角度评估PROMIS疲劳条目库中一部分条目的相关性。（2）确定MS患者认为临床医生询问其疲劳经历时，疲劳的其他重要方面。
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