University of Toledo College of Medicine and Life Sciences, 3000 Arlington Ave., OH, 43606, Toledo, USA.
Division of Hematology & Oncology, Department of Medicine, The University of Toledo Medical Center, Toledo, OH, USA.
J Cancer Educ. 2023 Dec;38(6):1894-1900. doi: 10.1007/s13187-023-02355-z. Epub 2023 Aug 22.
Pancreatic cancer is one of the most lethal diseases worldwide and incidence continues to rise, resulting in increased deaths each year. In the modern era, patients often turn to online sources like YouTube for information regarding their disease, which may be subject to a high degree of bias and misinformation; previous analyses have demonstrated low quality of other cancer-related YouTube videos. Thus, we sought to determine if patients can rely on educational YouTube videos for accurate and comprehensive information about pancreatic cancer diagnosis and treatment. We designed a search query and inclusion/exclusion criteria based on published studies evaluating YouTube user tendencies, which were used to identify videos most likely watched by patients. Videos were evaluated based on two well-known criteria, the DISCERN and JAMA tools, as well as a tool published by Sahin et al. to evaluate the comprehensiveness of YouTube videos. Statistical analyses were performed using Chi-square analysis to compare categorical variables. We used linear regression to assess for correlations between quantitative variables. Kruskal-Wallis and independent samples t-test were used to compare means between groups. We assessed inter-rater reliability using Cronbach's alpha. After the initial search query, 39 videos were retrieved that met inclusion criteria. The comprehensiveness and quality of these materials was generally low to moderate, with only 7 videos being considered comprehensive. Pearson's R demonstrated strong correlations between video length and both comprehensiveness and quality. Higher-quality videos also tended to be newer. YouTube videos regarding pancreatic cancer are generally of low to moderate quality and lack comprehensiveness, which could affect patients' perceptions of their disease or understanding of treatment options. These videos, which have collectively been viewed over 6 million times, should be subject to some form of expert review before upload, and producers of this content should consider citing the sources used in the video.
胰腺癌是全球最致命的疾病之一,其发病率持续上升,导致每年死亡人数增加。在现代,患者经常转向 YouTube 等在线资源获取有关其疾病的信息,但这些信息可能存在高度的偏见和错误信息;之前的分析表明,其他与癌症相关的 YouTube 视频质量较低。因此,我们试图确定患者是否可以依赖教育性的 YouTube 视频获取有关胰腺癌诊断和治疗的准确和全面的信息。
我们根据评估 YouTube 用户倾向的已发表研究设计了搜索查询和纳入/排除标准,这些标准用于识别最有可能被患者观看的视频。根据两个著名的标准,即 DISCERN 和 JAMA 工具,以及 Sahin 等人发布的评估 YouTube 视频全面性的工具,对视频进行了评估。使用卡方分析进行统计分析,以比较分类变量。我们使用线性回归来评估定量变量之间的相关性。使用 Kruskal-Wallis 和独立样本 t 检验来比较组间的平均值。我们使用 Cronbach 的 alpha 评估了评分者间的可靠性。
在初始搜索查询后,检索到 39 个符合纳入标准的视频。这些材料的全面性和质量普遍较低到中等,只有 7 个视频被认为是全面的。Pearson's R 显示视频长度与全面性和质量之间存在很强的相关性。高质量的视频往往也更新。
YouTube 上关于胰腺癌的视频质量普遍较低到中等,缺乏全面性,这可能会影响患者对疾病的认知或对治疗方案的理解。这些视频的总浏览量超过 600 万次,在上传之前应该经过某种形式的专家审查,并且应该考虑在视频中引用使用的来源。