van Wezel Nienke, Francke Anneke L, Kayan-Acun Emine, Ljm Devillé Walter, van Grondelle Nies J, Blom Marco M
Alzheimer Nederland, Amersfoort, the Netherlands
Netherlands Institute for Health Services Research (NIVEL), Utrecht, the Netherlands; Department of Public and Occupational Health, EMGO+/VUmc Amsterdam, the Netherlands.
Dementia (London). 2016 Jan;15(1):69-84. doi: 10.1177/1471301213517703. Epub 2014 Jan 8.
The prevalence of dementia is increasing among non-western immigrants. It is known that family care is provided relatively often among immigrant groups. Until now, however, relatively little was known about how relatives of people with dementia in the immigrant communities perceive family care. This study therefore focuses on describing the perspectives of female Turkish, Moroccan and Surinamese Creole family carers in the Netherlands about providing family care to a close relative with dementia.
Forty-one individual interviews and six focus group interviews (n=28) were held with female Turkish, Moroccan and Surinamese Creole family carers who are looking after a close relative with dementia. A qualitative analysis of the interviews has been carried out, supported by the software MaxQda.
Related to their cultural and religious backgrounds, female family carers with Turkish, Moroccan or Surinamese Creole origins see family care as a task that they should carry out with respect and love. They feel that family care is superior to professional care and that it is principally a task for women. If men do have a role in family care, then it generally covers non-physical aspects. Despite the fact that the family carers interviewed listed aspects that make caring for a close relative with dementia difficult, they do say that they get a great deal of satisfaction from providing this care. In Turkish and Moroccan families in particular this type of care leads to more recognition and appreciation of the daughter or daughter-in-law who is giving it.
Family carers of Turkish, Moroccan or Surinamese Creole origin derive a great deal of satisfaction from giving family care to a relative with dementia. This fulfilment largely outweighs the burden of care. Professional support or information for these family carers can be improved by also focusing on the positive aspects of providing family care instead of an exclusive focus on reducing the burden.
痴呆症在非西方移民中的患病率正在上升。众所周知，移民群体中相对经常提供家庭护理。然而，到目前为止，对于移民社区中痴呆症患者的亲属如何看待家庭护理，人们了解得相对较少。因此，本研究着重描述荷兰的土耳其、摩洛哥和苏里南克里奥尔女性家庭护理人员对为患有痴呆症的近亲提供家庭护理的看法。
对41名照顾患有痴呆症近亲的土耳其、摩洛哥和苏里南克里奥尔女性家庭护理人员进行了个人访谈，并进行了6次焦点小组访谈（n = 28）。在MaxQda软件的支持下，对访谈进行了定性分析。
与她们的文化和宗教背景相关，有土耳其、摩洛哥或苏里南克里奥尔血统的女性家庭护理人员将家庭护理视为一项她们应怀着尊重和爱意去履行的任务。她们认为家庭护理优于专业护理，并且这主要是女性的任务。如果男性在家庭护理中确实发挥作用，那么通常涉及非身体方面。尽管接受访谈的家庭护理人员列举了照顾患有痴呆症的近亲所面临的困难，但她们表示从提供这种护理中获得了极大的满足感。特别是在土耳其和摩洛哥家庭中，这种护理方式使提供护理的女儿或儿媳获得了更多认可和赞赏。
有土耳其、摩洛哥或苏里南克里奥尔血统的家庭护理人员从为患有痴呆症的亲属提供家庭护理中获得了极大的满足感。这种满足感在很大程度上超过了护理负担。通过关注提供家庭护理的积极方面，而不是仅仅专注于减轻负担，可以改善对这些家庭护理人员的专业支持或信息提供。
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