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以移民背景家庭中的痴呆症护理为框架:对从业者和家庭护理人员观点及经历的分析。

Framing dementia care in families with a migration background: An analysis of practitioners' and family caregivers' views and experiences.

作者信息

Ahmad Menal, Saharso Sawitri, Tonkens Evelien

机构信息

Department of Sociology, VU Amsterdam, The Netherlands.

Department of Citizenship and Humanization of the Public Sector, University of Humanistic Studies, Utrecht, The Netherlands.

出版信息

Ageing Soc. 2025 Jan;45(1):123-144. doi: 10.1017/S0144686X23000260. Epub 2023 May 26.

Abstract

Little is known regarding the ways in which practitioners' views and approaches impact support for persons with a migration background (PwM) caring for individuals with dementia. This paper responds to this knowledge gap by identifying how practitioners frame dementia care in families with a migration background, and how these frames can be understood in light of the experiences of PwM caring for a family member with dementia. A total of 41 participants were included. Namely, 10 practitioners (i.e., health and social care workers) and 31 PwM caring for a family member with dementia. All participants were part of a qualitative research project on dementia care in Dutch families with a migration background. Practitioners' expressed frames were identified through Hochschild's interpretive framework of "framing and feeling rules." Thereafter, practitioners' identified frames were related to the care-experiences of PwM caring for a family member with dementia. Findings indicate that practitioners operate within an approach that does not sufficiently take into account the uniqueness of each family caregiver. This leads to frictions within the practitioner-client relationship. We thus highligh the need for discussions about the tenability of practitioners' views and approaches in an increasingly globalized and diverse society.

摘要

关于从业者的观点和方法如何影响对有移民背景的痴呆症患者照护者的支持,目前所知甚少。本文通过确定从业者如何构建有移民背景家庭中的痴呆症照护框架,以及如何根据有移民背景的痴呆症患者照护家庭成员的经历来理解这些框架,来回应这一知识空白。总共纳入了41名参与者。具体来说,有10名从业者(即卫生和社会护理工作者)以及31名有移民背景的痴呆症患者照护家庭成员。所有参与者都是一个关于荷兰有移民背景家庭中痴呆症照护的定性研究项目的一部分。通过霍赫希尔德的“构建框架和情感规则”解释性框架确定从业者表达的框架。此后,将从业者确定的框架与有移民背景的痴呆症患者照护家庭成员的照护经历联系起来。研究结果表明,从业者采用的方法没有充分考虑每个家庭照护者的独特性。这导致了从业者与服务对象关系中的摩擦。因此,我们强调有必要在日益全球化和多样化的社会中讨论从业者观点和方法的合理性。

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Estimating dementia cases amongst migrants living in Europe.估算居住在欧洲的移民中的痴呆病例数。
Eur J Neurol. 2019 Sep;26(9):1191-1199. doi: 10.1111/ene.13964. Epub 2019 May 20.
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Demographic trends and public health in Europe.欧洲的人口趋势与公共卫生
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