Khetani Mary A, Cliff Anna B, Schelly Cathy, Daunhauer Lisa, Anaby Dana
1Department of Occupational Therapy, Colorado State University, Fort Collins, CO, USA.
Phys Occup Ther Pediatr. 2014 Mar 26. doi: 10.3109/01942638.2014.899288.
ABSTRACT Aims: The purpose of this study was to explore the utility of the Participation and Environment Measure for Children and Youth (PEM-CY) for collaborative care planning with parents of children with disabilities. Methods: An explanatory sequential mixed methods approach was employed to examine how community-based service providers interpret and apply PEM-CY case results to set goals and formulate care plans with parents. We used two distinct, interactive phases that included collection and summary of PEM-CY data in Phase One (quantitative) and sequential collection and analysis of interview data during Phase Two (qualitative). Twenty-three parents of children with disabilities (mean age = 10.7 years) completed the PEM-CY community section during Phase One (quan). Four PEM-CY case reports were used with seven providers who were interviewed during Phase Two (QUAL). Results: Providers identified a four-step decisional support algorithm for leveraging PEM-CY case results in care planning: (1) parent rank orders activities in which change is desired, (2) child preferences are incorporated, (3) provider clarifies parent and child goals, and (4) activity-specific supports, barriers, and strategies are identified. Conclusions: Further validation and refinement of the decisional support algorithm with parents and children when applied to PEM-CY home and school reports is discussed.
摘要 目的：本研究旨在探讨儿童和青少年参与及环境测量工具（PEM-CY）在与残疾儿童家长进行协作护理规划中的效用。方法：采用解释性序列混合方法，研究社区服务提供者如何解读和应用PEM-CY案例结果，以便与家长设定目标并制定护理计划。我们使用了两个不同的互动阶段，第一阶段（定量）收集和汇总PEM-CY数据，第二阶段（定性）依次收集和分析访谈数据。23名残疾儿童家长（平均年龄 = 10.7岁）在第一阶段（定量）完成了PEM-CY社区部分。在第二阶段（定性），7名提供者对4份PEM-CY案例报告进行了访谈。结果：提供者确定了一个四步决策支持算法，用于在护理规划中利用PEM-CY案例结果：（1）家长对希望改变的活动进行排序，（2）纳入儿童偏好，（3）提供者明确家长和儿童的目标，（4）确定特定活动的支持、障碍和策略。结论：讨论了在将决策支持算法应用于PEM-CY家庭和学校报告时，与家长和儿童进一步进行验证和完善的问题。
