Dardas Latefa Ali, Ahmad Muayyad M
1MSN, RN, Teaching Assistant, Faculty of Nursing, The University of Jordan, Amman, Jordan 2PhD, RN, Professor, Faculty of Nursing, The University of Jordan, Amman, Jordan.
J Nurs Res. 2014 Sep;22(3):183-91. doi: 10.1097/jnr.0000000000000023.
The lifelong experience of raising a child with a complex developmental disability such as autistic disorder is considered one of the most significant parenting stressors, with the potential to spill over into various areas of the life of parents. Therefore, studying the psychological functioning for parents of children with developmental disabilities requires the consideration of multiple factors acting and interacting concurrently.
The purpose of this study was to examine the relationship between two sets of variables in a sample of parents of children with autistic disorder. The first set was composed of the parents' characteristics and the coping strategies used. The second set was composed of three stress subscales-parental distress (PD), parent-child dysfunctional interaction (PCDI), and difficult child (DC)-and the parental quality of life (QOL).
Canonical correlation multivariate analysis was used to examine the relationship between the sets of variables in 184 Jordanian parents of children with autistic disorder.
The analyses revealed that the parents who have higher incomes, use diverse problem-solving strategies, exhibit less escape-avoidance, and exhibit less responsibility acceptance behavior tended to report lower PD, PCDI, and DC scores and a higher QOL score. The analyses also revealed that being an older parent, having more time since the child's autistic diagnosis, and using more distancing coping strategies were associated with lower PD scores, higher PCDI and DC scores, and better QOL.
This study is the first to investigate a wide range of parental psychosocial impacts as well as several sociodemographic factors that are possibly associated with raising a child with autistic disorder. The results indicate that health professionals working with parents of children with autistic disorder need to consider holistically the factors that can potentially affect the parents' health and well-being and provide care that focuses on the parents as both clients and caregivers.
抚养患有复杂发育障碍(如自闭症谱系障碍)孩子的终生经历被认为是最重大的育儿压力源之一,有可能波及父母生活的各个方面。因此,研究发育障碍儿童父母的心理功能需要考虑同时起作用和相互作用的多种因素。
本研究的目的是在自闭症谱系障碍儿童的父母样本中检验两组变量之间的关系。第一组由父母的特征和所采用的应对策略组成。第二组由三个压力子量表——父母苦恼(PD)、亲子功能失调互动(PCDI)和难养儿童(DC)——以及父母生活质量(QOL)组成。
采用典型相关多元分析来检验184名约旦自闭症谱系障碍儿童父母的变量组之间的关系。
分析表明,收入较高、采用多种解决问题策略、较少表现出逃避回避行为且较少表现出责任接受行为的父母往往报告较低的PD、PCDI和DC得分以及较高的QOL得分。分析还表明,父母年龄较大、自孩子被诊断为自闭症以来时间较长以及采用更多疏离应对策略与较低的PD得分、较高的PCDI和DC得分以及更好的QOL相关。
本研究首次调查了广泛的父母心理社会影响以及一些可能与抚养自闭症谱系障碍儿童相关的社会人口学因素。结果表明,与自闭症谱系障碍儿童父母合作的健康专业人员需要全面考虑可能影响父母健康和幸福的因素,并提供以父母作为客户和照顾者为重点的护理。