Carrion Iraida V, Cagle John G, Van Dussen Daniel J, Culler Krystal L, Hong Seokho
School of Social Work, University of South Florida, Tampa, FL, USA
School of Social Work, University of Maryland-Baltimore, Baltimore, MD, USA.
Am J Hosp Palliat Care. 2015 Sep;32(6):647-53. doi: 10.1177/1049909114536023. Epub 2014 Jun 5.
Among Hispanics, incomplete knowledge about hospice care may explain low rates of utilization and culturally-specific beliefs about pain and pain treatments may contribute to disparities in pain management.
To compare (1) knowledge and attitudes regarding hospice, (2) and beliefs about pain and pain medication between Hispanics and non-Hispanics.
A cross-sectional phone-based survey of adults living in the contiguous United States was conducted using randomly selected phone numbers with over-sampling for diversity. Measures assessed knowledge (a 23-item test), attitudes (an 8-item scale), experiences, preferences related to hospice and beliefs regarding pain and pain management.
123 individuals participated in the survey, 13% of whom were Hispanic. Hispanics were less likely to have heard of hospice are (p <. 001) and, among those who had, more likely to have inaccurate information about it (p = .05). Specifically, Hispanics were more likely to report that only individuals over age 65 are eligible for hospice services, which is incorrect (44% vs. 93% of non-Hispanics; p=.001). Only 67% of Hispanics knew that hospice helps family members as well as the dying person. More Hispanics (43%) than non-Hispanics (9.3%) reported that admitting pain is a sign of weakness (p < .001). A greater proportion of Hispanic respondents agreed that a good patient does not talk about pain (p = .07): 38% vs. 18% from non-Hispanics.
Despite the increasing knowledge of hospice care among Hispanics, specific information about the scope of services remains limited. Cultural beliefs about pain management, along with inadequate knowledge of the role of pain management at end of life, persist.
在西班牙裔人群中，对临终关怀护理的了解不全面可能是利用率较低的原因，而关于疼痛及疼痛治疗的特定文化信仰可能导致疼痛管理方面的差异。
比较（1）西班牙裔和非西班牙裔人群对临终关怀的知识和态度，（2）以及他们对疼痛和止痛药的看法。
采用随机抽取电话号码的方式，对居住在美国本土的成年人进行基于电话的横断面调查，并对不同人群进行过度抽样。测量指标包括知识（一项23题测试）、态度（一个8项量表）、经历、与临终关怀相关的偏好以及对疼痛和疼痛管理的看法。
123人参与了调查，其中13%为西班牙裔。西班牙裔人群听说过临终关怀护理的可能性较小（p <.001），而在听说过的人群中，对其信息了解不准确的可能性更大（p =.05）。具体而言，西班牙裔人群更有可能报告只有65岁以上的个人才有资格享受临终关怀服务，这是不正确的（44%对非西班牙裔的93%；p =.001）。只有67%的西班牙裔人群知道临终关怀护理对家庭成员和临终者都有帮助。报告承认疼痛是软弱表现的西班牙裔人群（43%）多于非西班牙裔人群（9.3%）（p <.001）。更大比例的西班牙裔受访者同意好病人不会谈论疼痛（p =.07）：38%对非西班牙裔的18%。
尽管西班牙裔人群对临终关怀护理的了解有所增加，但关于服务范围的具体信息仍然有限。关于疼痛管理的文化信仰以及对临终疼痛管理作用的了解不足依然存在。
