Salander Pär, Bergknut Mirjam, Henriksson Roger
Department of Social Work, Umeå University , Umeå , Sweden.
Acta Oncol. 2014 Sep;53(9):1205-11. doi: 10.3109/0284186X.2014.921725. Epub 2014 Jun 9.
Lung cancer is associated with biomedical and psychological symptoms as well as a generally poor prognosis. When healthcare staff communicate with lung cancer patients it is essential that they consider the patients' own views of the situation to avoid putting unnecessary strain upon the patients' shoulders. The purpose of the present study is to better understand how a group of patients with lung cancer reflects upon their new life situation after diagnosis and primary treatment.
Fifteen patients with non-small cell lung cancer were consecutively included and, where possible, repeatedly interviewed during the course of the disease process. The 29 interviews were conducted in a thematically structured narrative form that facilitated a dialog between the interviewer and the patient. The interviews covered experiences with health care, living an everyday life, and thoughts about the future. FINDINGS AND REFLECTIONS: By focusing on how the patients more or less preconsciously elaborated mentally with their vulnerable situation, it was possible to detect different mental manoeuvres that they used as a way of creating hope. The patients distanced themselves from their disease, relied on a feeling of a sound body, idealised treatment possibilities, relied on healthy behaviour, focused on a concrete project, found that they were better off than others, and took solace in the fact that there were patients who had successfully managed the disease.
The patients were not passive victims in the face of their diagnosis, but were actively trying to find ways of looking at their despairing situation in a positive light. A creative process for psychological survival had thus been initiated by the patients. We suggest that acknowledging this process should be the starting point from which physicians can engage in hope work with their patients.
肺癌与生物医学和心理症状相关,且总体预后较差。医护人员与肺癌患者沟通时,必须考虑患者对自身情况的看法,以免给患者带来不必要的负担。本研究的目的是更好地了解一组肺癌患者在诊断和初步治疗后如何看待自己的新生活状况。
连续纳入15例非小细胞肺癌患者,并在疾病过程中尽可能多次进行访谈。29次访谈采用主题结构化叙事形式进行,便于访谈者与患者之间展开对话。访谈内容涵盖医疗保健经历、日常生活以及对未来的思考。
通过关注患者或多或少下意识地如何在心理上应对自身脆弱状况,有可能发现他们用来创造希望的不同心理策略。患者与疾病保持距离,依靠健康身体的感觉,理想化治疗可能性,依靠健康行为,专注于一个具体项目,发现自己比其他人情况更好,并从有患者成功战胜疾病这一事实中得到慰藉。
面对诊断,患者并非被动的受害者,而是积极尝试以积极的眼光看待自己绝望的处境。患者由此开启了一个心理求生的创造性过程。我们建议,认识到这一过程应成为医生与患者开展希望工作的出发点。