Vogler Jana, Klein Anke-Maria, Bender Andreas
Department of Neurology .
Brain Inj. 2014;28(11):1381-8. doi: 10.3109/02699052.2014.919536. Epub 2014 Jun 19.
The present study aimed to assess long-term health-related quality-of-life (HRQoL) and potential predictors as well as burden in caregivers of patients with acquired brain injury (ABI). Furthermore, depressive symptoms, well-being, HRQoL and happiness were evaluated in caregivers and patients who had regained communication skills.
Prospective cross-sectional survey.
Data of 104 caregivers and 30 patients were analysed. A multiple linear regression model was calculated to identify independent predictors for HRQoL in caregivers. Additionally, correlation analysis was conducted to evaluate associations between patient questionnaire results and caregiver HRQoL.
After a mean time post-injury of 18 years, HRQoL and perceived health status in caregivers remained below normative scores of age-matched controls. Although HRQoL and perceived health status were lower in patients than in caregivers, there was no difference in happiness, perceived QoL or enjoyment of life. Reduced perception in well-being (WHO-5 score < 13) was found in 52% of the caregivers and 36% of the patients. HRQoL in caregivers was predicted by well-being, caregiver strain, depressive symptoms and caregiver age. Furthermore, HRQoL of caregivers was correlated with depressive symptoms and happiness in patients.
This study under-scores the importance of long-term support for caregivers.
本研究旨在评估获得性脑损伤（ABI）患者的长期健康相关生活质量（HRQoL）、潜在预测因素以及照顾者的负担。此外，还对恢复沟通能力的照顾者和患者的抑郁症状、幸福感、HRQoL和快乐感进行了评估。
前瞻性横断面调查。
分析了104名照顾者和30名患者的数据。计算多元线性回归模型以确定照顾者HRQoL的独立预测因素。此外，进行相关分析以评估患者问卷结果与照顾者HRQoL之间的关联。
受伤后平均18年，照顾者的HRQoL和感知健康状况仍低于年龄匹配对照组的标准分数。虽然患者的HRQoL和感知健康状况低于照顾者，但在幸福感、感知生活质量或生活乐趣方面没有差异。52%的照顾者和36%的患者存在幸福感降低（WHO-5评分<13）。照顾者的HRQoL由幸福感、照顾者压力、抑郁症状和照顾者年龄预测。此外，照顾者的HRQoL与患者的抑郁症状和幸福感相关。
本研究强调了对照顾者长期支持的重要性。
