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[职场中精神障碍的披露与工作调整:与重度精神障碍患者工作任期相关的两个因素]

[Disclosure of a mental disorder in the workplace and work accommodations: two factors associated with job tenure of people with severe mental disorders].

作者信息

Corbière M, Villotti P, Toth K, Waghorn G

机构信息

École de réadaptation, université de Sherbrooke, campus de Longueuil, 150, place Charles LeMoyne, J4K 0A8 Longueuil, Québec, Canada.

Département de psychologie et sciences cognitives, université de Trente, via Matteo del Ben 5, 38068 Rovereto, Italie.

出版信息

Encephale. 2014 Jun;40 Suppl 2:S91-S102. doi: 10.1016/j.encep.2014.04.006. Epub 2014 Jun 16.

DOI:10.1016/j.encep.2014.04.006
PMID:24948480
Abstract

Job tenure for people with severe mental disorders (e.g., schizophrenia) remains a stumbling-block to their work integration. However, the length of job tenure can vary according to the workplace (e.g., provided resources) and the work context (e.g., regular market, social firms). This gap can be explained in part by diverse organisational components, particularly the implementation of work accommodations, which is related to the disclosure of the mental disorder in the workplace. Indeed, in the scientific literature, the principal reason associated with disclosure is in regards to requesting work accommodations. The main objective of this paper is to increase our understanding of the relationships between these three concepts - disclosure of a mental disorder, work accommodations and natural supports, and job tenure - by reviewing the specialized literature and presenting the work of the authors of this paper. To do so, the authors will address the following questions: How do we define 'disclosure' of a mental disorder in the workplace and what are the strategies to consider before disclosing? What is the decision-making process related to disclosure in the workplace? How are the three concepts - disclosure of the mental disorder in the workplace, work accommodations and job tenure - intertwined? Finally, how can employment specialists facilitate the work integration of people with severe mental disorders by considering the three concepts mentioned above? Results from a review of the literature show that disclosure of a mental disorder is a dialectical process that goes beyond the question: to tell or not to tell? In fact, it is not a single binary decision. Several components are associated with the disclosure concept, and can be summarized by the questions: What, how, when and to whom to disclose his/her mental condition? Reasons for disclosing his/her mental disorder in the workplace are numerous, characterized by personal, interpersonal and work environmental factors, on one hand. On the other hand, disclosure has potential consequences, both positive (e.g., to obtain work accommodations) and negative (e.g., stigma). A decision-making process takes place when people with a severe mental disorder think about the possibility of disclosing their mental condition in the workplace - a complex decisional process involving the need to evaluate different aspects (i.e. individual, interpersonal and work environmental factors). Also, the literature supports the fact that requiring work accommodations is often related to the disclosure of the mental disorder, when natural supports in the workplace are not available. The literature is scarce regarding the correlations between the concepts of disclosure, implementation of work accommodations and job tenure; however, a more recent study demonstrated this significant relationship, in which the supervisor and co-worker supports are crucial. Employment specialists or counselors recognise the importance of planned disclosure as a means to obtain access to work adjustments in the workplace and to prevent stigma. The employment specialist working in supported employment programs for instance, could adopt with his/her clients a plan for managing the pros and cons of disclosure of the mental disorder in the workplace; this plan is entitled: Managing personal information. It consists of several steps - for example, to collect details of any sensitive information such as diagnosis, to identify work restrictions with the client, to have a common agreement (employment specialists and clients together) on terms to describe work restrictions - to help clients feel empowered and more confident as productive and valued workers. This plan allows employment specialists to work through the disclosure concept, often negatively connoted, and to adopt a more normalising strategy. Furthermore, additional tools for supporting the management of personal information plan could be used such as the Decision-Making About Disclosure Scale, the Barriers to Employment and Coping Efficacy Scale, and the Work Accommodation and Natural Support Scale, to name a few. To conclude, job tenure for people with severe mental disorders is not a pious vow, several pragmatic ingredients for intervening on this issue are now available.

摘要

严重精神障碍患者(如精神分裂症患者)的工作任期仍然是他们融入工作的绊脚石。然而,工作任期的长短会因工作场所(如提供的资源)和工作环境(如正规市场、社会企业)而有所不同。这种差距部分可以通过不同的组织因素来解释,特别是工作调整的实施,这与在工作场所披露精神障碍有关。事实上,在科学文献中,与披露相关的主要原因是关于请求工作调整。本文的主要目的是通过回顾专业文献并介绍本文作者的研究工作,加深我们对精神障碍披露、工作调整和自然支持以及工作任期这三个概念之间关系的理解。为此,作者将探讨以下问题:我们如何定义工作场所中精神障碍的“披露”,披露前需要考虑哪些策略?工作场所披露的决策过程是怎样的?精神障碍在工作场所的披露、工作调整和工作任期这三个概念是如何相互交织的?最后,就业专家如何通过考虑上述三个概念来促进严重精神障碍患者融入工作?文献综述的结果表明,精神障碍的披露是一个辩证的过程,不仅仅是“告知还是不告知”的问题。事实上,这不是一个简单的二元决策。与披露概念相关的有几个因素,可以用以下问题来概括:披露什么、如何披露、何时披露以及向谁披露他/她的精神状况?在工作场所披露他/她的精神障碍的原因有很多,一方面是个人、人际和工作环境因素。另一方面,披露有潜在的后果,既有积极的(如获得工作调整)也有消极的(如污名化)。当严重精神障碍患者考虑在工作场所披露他们的精神状况时,会进行一个决策过程——这是一个复杂的决策过程,涉及评估不同方面(即个人、人际和工作环境因素)的必要性。此外,文献支持这样一个事实,即当工作场所没有自然支持时,要求工作调整往往与精神障碍的披露有关。关于披露概念、工作调整的实施和工作任期之间的相关性,文献很少;然而,最近的一项研究证明了这种显著关系,其中主管和同事的支持至关重要。就业专家或顾问认识到有计划的披露作为获得工作场所工作调整和防止污名化的一种手段的重要性。例如,在支持性就业项目中工作的就业专家可以与他/她的客户采用一个计划来管理在工作场所披露精神障碍的利弊;这个计划名为:管理个人信息。它包括几个步骤——例如,收集任何敏感信息的细节,如诊断结果,与客户确定工作限制,就业专家和客户共同就描述工作限制的条款达成一致——以帮助客户感到有能力并且更自信地成为有生产力和有价值的员工。这个计划使就业专家能够处理通常带有负面含义的披露概念,并采用一种更常态化的策略。此外,可以使用其他支持个人信息管理计划的工具,如披露决策量表、就业障碍与应对效能量表以及工作调整与自然支持量表等等。总之,严重精神障碍患者的工作任期不是一个虔诚的誓言,现在有几个务实的因素可用于干预这个问题。

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