Finnegan-John Jennifer, Thomas Veronica J
Florence Nightingale School of Nursing and Midwifery, Kings College London, London SE1 8WA, UK.
Department of Psychology, Institute of Psychiatry, Kings College London, De Crespigny Park, London SE5 8AF, UK ; Department of Haematology, Guy's Hospital, 4th Floor Southwark Wing, Great Maze Pond, London SE1 9RT, UK.
ISRN Nephrol. 2012 Oct 21;2013:308986. doi: 10.5402/2013/308986. eCollection 2013.
Background. A needs assessment was conducted on renal patients registered to a leading hospital trust in London in order to explore their psychological, social, and spiritual needs. The aim of the needs assessment was to create an evidence base for the development of a comprehensive health psychology service to run concurrently with a renal counselling support service within the department. Methodology. This study utilised a series of semistructured face-to-face interviews and focus groups with renal patients and their carers, to explore how ESRD impacted quality of life. Results. A thematic analysis was undertaken. Seven emergent themes were identified that influenced the quality of life of people with EDRD: physiological impact, impact of treatment, impact on daily life, psychological impact, impact on relationships, social impact and coping responses. Conclusion. The needs assessment clearly identified that ESRD carries with it emotional, physical, psychological, social, and existential burdens. The data from this needs assessment study has created an evidence base upon which future health psychology services can be built within this leading UK hospital.
背景。对伦敦一家领先医院信托机构登记在册的肾病患者进行了需求评估，以探究他们的心理、社会和精神需求。需求评估的目的是为开发一项全面的健康心理学服务建立证据基础，该服务将与该部门的肾脏咨询支持服务同时开展。方法。本研究采用了一系列与肾病患者及其护理人员的半结构化面对面访谈和焦点小组，以探究终末期肾病（ESRD）如何影响生活质量。结果。进行了主题分析。确定了七个影响终末期肾病患者生活质量的新出现主题：生理影响、治疗影响、对日常生活的影响、心理影响、对人际关系的影响、社会影响和应对反应。结论。需求评估明确表明，终末期肾病带来了情感、身体、心理、社会和生存负担。这项需求评估研究的数据为在这家英国领先医院建立未来的健康心理学服务奠定了证据基础。
