Manskow Unn Sollid, Sigurdardottir Solrun, Røe Cecilie, Andelic Nada, Skandsen Toril, Damsgård Elin, Elmståhl Sølve, Anke Audny
Department of Rehabilitation, University Hospital of North Norway, Tromso, Norway (Ms Manskow and Dr Anke); Faculty of Health Sciences, Department of Health and Care Sciences, University of Tromso, Norway (Ms Manskow and Dr Damsgård); Department of Research, Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway (Dr Sigurdardottir); Department of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway (Dr Røe and Andelic); Department of Neuroscience, Faculty of Medicine, Norwegian University of Science and Technology (NTNU), Trondheim, Norway (Dr Skandsen); Department of Physical Medicine and Rehabilitation, St Olavs Hospital, Trondheim, Norway (Dr Skandsen); Department of Health Sciences, Division of Geriatric Medicine, Lund University, Sweden (Dr Elmståhl); Faculty of Health Sciences, Department of Clinical Medicine, University of Tromso, Norway (Dr Anke); Faculty of Medicine, University of Oslo, Norway (Dr Røe).
J Head Trauma Rehabil. 2015 Nov-Dec;30(6):411-23. doi: 10.1097/HTR.0000000000000085.
To assess burden in the caregivers of patients with severe traumatic brain injury (TBI) 1 year postinjury, related to caregiver's demographic data and social network, patient's demographic data, injury severity, and functional status.
Prospective national multicenter study. Self-report from caregivers, patient data collected from the national cohort on patients with severe TBI.
92 caregivers.
The Caregiver Burden Scale (CBS).
Total caregiver burden was reported high in 16% of caregivers and moderate in 34%. The mean total burden index was 2.12, indicating a moderate burden. Caregivers reported highest scores on the General strain index, followed by the Disappointment index. Poor social network, feeling loneliness, and caring for patients with severe disability were significant predictors of higher burden in univariate analyses (P < .01). Multiple linear regression analyses showed that experiencing loneliness and caring for a patient with more severe disability were independent predictors for higher caregiver burden for all CBS indices. Marital status (married) and low frequency of meeting friends were significant results in some indices.
Lack of a social network, feeling loneliness, and patient's functional status are predictors of caregiver burden. General strain, disappointment, and isolation were identified as areas in which caregiver burden is high.
评估重度创伤性脑损伤（TBI）患者受伤1年后其照料者的负担，该负担与照料者的人口统计学数据和社会网络、患者的人口统计学数据、损伤严重程度及功能状态相关。
前瞻性全国多中心研究。照料者的自我报告，患者数据从全国重度TBI患者队列中收集。
92名照料者。
照料者负担量表（CBS）。
16%的照料者报告总照料者负担高，34%的照料者报告负担中等。总负担指数的平均值为2.12，表明负担中等。照料者在一般应激指数上得分最高，其次是失望指数。在单因素分析中，社会网络差、感到孤独以及照料重度残疾患者是负担较高的显著预测因素（P < 0.01）。多元线性回归分析表明，感到孤独以及照料残疾程度更重的患者是所有CBS指数中照料者负担较高的独立预测因素。婚姻状况（已婚）和与朋友见面频率低在某些指数中是显著结果。
缺乏社会网络、感到孤独以及患者的功能状态是照料者负担的预测因素。一般应激、失望和孤立被确定为照料者负担较高的领域。
