Department of Health Sciences, Lund University, Lund, Sweden The PRO-CARE Group, School of Health and Society, Kristianstad University, Kristianstad, Sweden.
Department of Health Sciences, Lund University, Lund, Sweden.
J Parkinsons Dis. 2014;4(4):657-63. doi: 10.3233/JPD-140399.
Parkinson's disease (PD) is associated with progressive mobility and walking difficulties. Although these aspects have been found to be central from a patient perspective, the perceived significance of walking is less well understood.
To explore the significance of walking as perceived and experienced by individuals with PD.
Eleven persons with PD (seven men; median age, 71 years; median PD duration, 7 years) participated. Data were collected through semi-structured interviews, which were recorded and transcribed verbatim. Data were qualitatively analysed by systematic text condensation.
The ability to walk had a complex and multifaceted impact on the participants, including physical, psychological and emotional aspects as well as on the ability to be active in daily life and to participate in society. The central role of coping strategies was prominent in filtering emotional reactions to physical changes, and when managing the activities and participation in everyday situations. The sense of unpredictability, uncertainty and loss of control were underlying phenomena in all categories. Furthermore, inability to manage walking difficulties had a negative impact on the participants' self-concept.
The central meaning of being able to walk appears to be intimately linked to an individual's social identity, emotional well-being and integrity. Consequently, being able to walk independently was a prerequisite to an autonomous life and participation in society. This implies that rehabilitation and other mobility interventions also need to consider individual emotional, psychological, and social implications, and to facilitate appropriate compensatory and coping strategies.
帕金森病（PD）与进行性移动和行走困难有关。尽管这些方面从患者角度来看是核心问题，但对行走的感知意义了解较少。
探讨 PD 患者对行走的感知和体验的意义。
11 名 PD 患者（7 名男性；中位年龄 71 岁；中位 PD 病程 7 年）参与。通过半结构化访谈收集数据，这些访谈被记录并逐字转录。通过系统文本浓缩对数据进行定性分析。
行走能力对参与者产生了复杂而多方面的影响，包括身体、心理和情感方面，以及在日常生活中保持活跃和参与社会的能力。应对策略的核心作用在过滤身体变化的情绪反应以及管理日常活动和参与方面表现得尤为突出。不可预测性、不确定性和失去控制的感觉是所有类别中的潜在现象。此外，无法管理行走困难会对参与者的自我概念产生负面影响。
能够行走的核心意义似乎与个体的社会身份、情感幸福感和完整性密切相关。因此，独立行走是自主生活和参与社会的先决条件。这意味着康复和其他移动干预措施还需要考虑个体的情感、心理和社会影响，并促进适当的补偿和应对策略。
