Young Kate, Fisher Jane, Kirkman Maggie
PhD Candidate, The Jean Hailes Research Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
Director, The Jean Hailes Research Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
J Fam Plann Reprod Health Care. 2015 Jul;41(3):225-34. doi: 10.1136/jfprhc-2013-100853. Epub 2014 Sep 2.
Endometriosis is experienced by approximately 10% of women worldwide; it is associated with significant burden on the woman, her family, and society.
The aim of this systematic review was to synthesise the available qualitative literature to increase our understanding of the effects of endometriosis on women's lives.
Seven social science and medical databases (PubMed, Medline, CINAHL, Web of Science, ScienceDirect, PsycInfo and Embase) and Google Scholar were searched for peer-reviewed papers published in English of research using qualitative methods.
Eighteen papers reporting 11 studies met the inclusion criteria. Participant numbers ranged from 15 to 61 women, all recruited from support groups and specialised clinics. Studies were conducted in high-income, Anglophone countries. The review identified four prominent themes: Life, Symptoms, Medical Experience, and Self. Women's reported experiences demonstrated opportunities for enhancing current clinical practice, including improved education about endometriosis for health professionals, the need to take a comprehensive approach to pain treatment, and initiating appropriate discussion of the impact on sex life. Significant evidence gaps were identified: there was inadequate investigation of women's experiences of endometriosis-associated infertility and of the impact of reduced social participation on perceived support and emotional well-being, and limited or no inclusion of the experiences of adolescent and post-menopausal women, women from low socioeconomic backgrounds, women who do not identify as Caucasian, and non-heterosexual women.
全球约10%的女性患有子宫内膜异位症；它给女性及其家庭和社会带来了巨大负担。
本系统评价的目的是综合现有的定性文献，以增进我们对子宫内膜异位症对女性生活影响的理解。
检索了七个社会科学和医学数据库（PubMed、Medline、CINAHL、Web of Science、ScienceDirect、PsycInfo和Embase）以及谷歌学术，查找使用定性方法发表的英文同行评审研究论文。
18篇报告11项研究的论文符合纳入标准。参与者人数从15名到61名女性不等，均来自支持小组和专科诊所。研究在高收入的英语国家进行。该评价确定了四个突出主题：生活、症状、医疗经历和自我。女性报告的经历显示了改善当前临床实践的机会，包括加强对卫生专业人员关于子宫内膜异位症的教育、采取全面的疼痛治疗方法的必要性，以及就对性生活的影响展开适当讨论。发现了明显的证据空白：对子宫内膜异位症相关不孕症女性的经历以及社会参与减少对感知支持和情绪健康的影响调查不足，青少年和绝经后女性、社会经济背景较低的女性、非白种女性以及非异性恋女性的经历纳入有限或未纳入。
