Levy R A, Signorelli F
Faculdade de Ciências Médicas, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil Centro de Imunoterapia de Ipanema - CITIPA, Rio de Janeiro, Brazil
Hospital Universitário Clementino Fraga Filho, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil Hospital Universitário Pedro Ernesto, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil.
Lupus. 2014 Oct;23(12):1265-8. doi: 10.1177/0961203314536480.
Adherence to treatment is fundamental for its success. It comprises compliance combined with persistency and should be constantly reassessed. This is true in all medical situations. In antiphospholipid syndrome (or Hughes' syndrome), in addition to taking the medication at the planned time so that its effect on blood can be assessed and the dose adjusted if necessary, all patients must incorporate healthy habits with a treatment that is lifelong and will be influenced by dietary changes and the use of many other medications. Following a regime for the treatment to be effective, and to avoid serious complications, often creates the sensation of 'living on a tightrope' for both the patients and the health care providers. Patient education along with constant monitoring using proper communication settings and tools are certain to improve adherence and outcomes.
坚持治疗是治疗成功的根本。它包括依从性以及持续性，并且应该不断重新评估。在所有医疗情况下都是如此。在抗磷脂综合征（或休斯综合征）中，除了在计划时间服药以便评估其对血液的影响并在必要时调整剂量外，所有患者都必须将健康的生活习惯融入到终身治疗中，而这种治疗会受到饮食变化和使用许多其他药物的影响。遵循一种治疗方案以使其有效并避免严重并发症，这常常让患者和医护人员都有一种“如履薄冰”的感觉。通过适当的沟通方式和工具进行患者教育并持续监测，肯定会提高依从性并改善治疗效果。
