痴呆症患者成年女儿照料者的同情疲劳
Compassion fatigue in adult daughter caregivers of a parent with dementia.
作者信息
Day Jennifer R, Anderson Ruth A, Davis Linda L
机构信息
Duke University, School of Nursing, Durham, North Carolina, USA.
出版信息
Issues Ment Health Nurs. 2014 Oct;35(10):796-804. doi: 10.3109/01612840.2014.917133.
Abstract
Adult daughters face distinct challenges caring for parents with dementia and may experience compassion fatigue: the combination of helplessness, hopelessness, an inability to be empathic, and a sense of isolation resulting from prolonged exposure to perceived suffering. Prior research on compassion fatigue has focused on professional healthcare providers and has overlooked filial caregivers. This study attempts to identify and explore risk factors for compassion fatigue in adult daughter caregivers and to substantiate further study of compassion fatigue in family caregivers. We used content analysis of baseline interviews with 12 adult daughter caregivers of a parent with dementia who participated in a randomized trial of homecare training. Four themes were identified in adult daughter caregiver interviews: (a) uncertainty; (b) doubt; (c) attachment; and (d) strain. Findings indicated adult daughter caregivers are at risk for compassion fatigue, supporting the need for a larger study exploring compassion fatigue in this population.
摘要
成年女儿在照顾患有痴呆症的父母时面临着独特的挑战，可能会经历同情疲劳：无助、绝望、无法产生同理心以及因长期接触感知到的痛苦而产生的孤立感交织在一起。先前关于同情疲劳的研究主要集中在专业医疗保健提供者身上，而忽视了家庭照顾者。本研究试图识别和探讨成年女性照顾者产生同情疲劳的风险因素，并为进一步研究家庭照顾者的同情疲劳提供依据。我们对12名参与家庭护理培训随机试验的痴呆症患者的成年女性照顾者进行了基线访谈，并进行了内容分析。在成年女性照顾者的访谈中确定了四个主题：（a）不确定性；（b）怀疑；（c）依恋；（d）压力。研究结果表明成年女性照顾者存在同情疲劳的风险，这支持了开展更大规模研究以探索该人群同情疲劳情况的必要性。
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