Northumbria University, Newcastle upon Tyne, UK.
School of Social Sciences, Humanities and Law, Teesside University, Middlesbrough, UK.
Eur J Cancer Care (Engl). 2022 Nov;31(6):e13702. doi: 10.1111/ecc.13702. Epub 2022 Sep 12.
To understand knowledge of, attitudes towards and decision-making around cervical and breast cancer screening in women with learning disabilities, family carers and paid carers.
A Q methodology study involving 13 women with learning disabilities, three family carers and five paid care workers, from the North-East of England. A Q-sort of 28 statements was completed with all participants completing a post-Q-sort interview to understand the reason behind the card placements. Factor analysis was completed using PQMethod and interpreted using framework analysis.
Factor 1, named 'Personal choice and ownership', explores how women with learning disabilities want to be supported to make their own decision to attend cancer screening and explored their preferred support needs. Factor 2, named 'Protecting vs. enablement', portrayed the battle family carers and paid care workers felt to protect women with learning disabilities from harm, whilst feeling that they were supporting women with learning disabilities to decide to attend cancer screening. Eight consensus statements were identified indicating a shared perspective.
Cancer screening services should ensure that women with learning disabilities are supported to make informed decisions to attend cancer screening and then be further supported throughout the cancer pathway.
了解智障妇女、家庭照顾者和付费照顾者对宫颈癌和乳腺癌筛查的知识、态度和决策。
一项涉及英格兰东北部的 13 名智障妇女、3 名家庭照顾者和 5 名付费护理人员的 Q 方法研究。所有参与者都完成了 28 个陈述的 Q 分类，并在完成 Q 分类后进行了访谈，以了解卡片放置的原因。使用 PQMethod 完成因子分析，并使用框架分析进行解释。
因子 1 命名为“个人选择和所有权”，探讨了智障妇女如何希望得到支持，以便自己决定参加癌症筛查，并探讨了她们的首选支持需求。因子 2 命名为“保护与赋能”，描述了家庭照顾者和付费照顾者为保护智障妇女免受伤害而感到的斗争，同时又感到他们在支持智障妇女决定参加癌症筛查。确定了八项共识陈述，表明存在共同的观点。
癌症筛查服务应确保智障妇女得到支持，以便做出知情决策，参加癌症筛查，然后在整个癌症治疗过程中得到进一步支持。
