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本文引用的文献

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Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study.从肾病综合征患儿获得 PROMIS 视角:中西部儿科肾脏病联盟研究。
Health Qual Life Outcomes. 2013 Mar 4;11:30. doi: 10.1186/1477-7525-11-30.
2
Promising insights into the health related quality of life for children with severe obesity.为严重肥胖儿童的健康相关生活质量提供了有希望的见解。
Health Qual Life Outcomes. 2013 Mar 1;11:29. doi: 10.1186/1477-7525-11-29.
3
PROMIS pediatric measures in pediatric oncology: valid and clinically feasible indicators of patient-reported outcomes.儿科肿瘤学中的 PROMIS 儿科测量:患者报告结局的有效且临床可行的指标。
Pediatr Blood Cancer. 2013 Mar;60(3):402-8. doi: 10.1002/pbc.24233. Epub 2012 Jul 24.
4
PROMIS Pediatric Anger Scale: an item response theory analysis.PROMIS 儿童愤怒量表:项目反应理论分析。
Qual Life Res. 2012 May;21(4):697-706. doi: 10.1007/s11136-011-9969-5. Epub 2011 Jul 22.
5
Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: built using item response theory.构建八项患者报告结局测量信息系统儿科生理功能量表:基于项目反应理论构建。
J Clin Epidemiol. 2011 Jul;64(7):794-804. doi: 10.1016/j.jclinepi.2010.10.012. Epub 2011 Feb 2.
6
Bifactor models and rotations: exploring the extent to which multidimensional data yield univocal scale scores.双因子模型和旋转:探索多维数据产生单一尺度分数的程度。
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7
PROMIS Pediatric Pain Interference Scale: an item response theory analysis of the pediatric pain item bank.PROMIS 儿童疼痛干扰量表:儿童疼痛项目库的项目反应理论分析。
J Pain. 2010 Nov;11(11):1109-19. doi: 10.1016/j.jpain.2010.02.005. Epub 2010 Jun 2.
8
An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales.儿童 PROMIS 焦虑和抑郁症状量表的项目反应分析。
Qual Life Res. 2010 May;19(4):595-607. doi: 10.1007/s11136-010-9619-3. Epub 2010 Mar 7.
9
Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey.PROMIS Pediatrics 大规模调查的抽样计划和患者特征。
Qual Life Res. 2010 May;19(4):585-94. doi: 10.1007/s11136-010-9618-4. Epub 2010 Mar 5.
10
Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study.儿科题库开发中的认知访谈方法:一项患者报告结局测量信息系统(PROMIS)研究。
Health Qual Life Outcomes. 2009 Jan 23;7:3. doi: 10.1186/1477-7525-7-3.

运用项目反应理论丰富和扩展患者报告结果测量信息系统(PROMIS®)儿科自评库。

Using item response theory to enrich and expand the PROMIS® pediatric self report banks.

作者信息

Quinn Hally, Thissen David, Liu Yang, Magnus Brooke, Lai Jin-Shei, Amtmann Dagmar, Varni James W, Gross Heather E, DeWalt Darren A

机构信息

Department of Psychology, University of North Carolina at Chapel Hill, 358 Davie Hall, CB #3270, Chapel Hill, NC, 27599, USA.

Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.

出版信息

Health Qual Life Outcomes. 2014 Oct 25;12:160. doi: 10.1186/s12955-014-0160-x.

DOI:10.1186/s12955-014-0160-x
PMID:25344155
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4212129/
Abstract

BACKGROUND

The primary objective was to enhance the content coverage of some of the pediatric self-report item banks for ages 8-17 years from the National Institutes of Health (NIH) Patient Reported Outcomes Measurement Information System (PROMIS®), and extend the range of precise measurement to higher levels of physical functioning.

METHODS

Data from 1,419 pediatric patients with cancer, chronic kidney disease, obesity, rehabilitation needs, rheumatic disease, and sickle cell disease were combined with item responses from the original standardization sample of 3,048 children to calibrate new items for the pediatric PROMIS Anger, Anxiety, Depressive Symptoms, Pain Interference, Fatigue, and physical functioning Upper Extremity and Mobility scales. Simultaneous or concurrent calibration using the graded item response theory model placed all of the items on the same scale.

RESULTS

Twenty-two of 28 potential new items were added across the seven scales. A recommended short form was proposed for the Anger scale, and the recommended short forms for the Anxiety and Depressive Symptoms scales were revised. Unfortunately, we were not particularly successful at extending the range of measurement for the physical functioning banks.

CONCLUSIONS

The present study expanded PROMIS pediatric item banks to add new content and to increase the range of measurement. Using item response theory, the banks were revised and expanded without changing the underlying scale of measurement. For Anger, Anxiety, and Depressive Symptoms, we successfully added new content that may render those banks more robust and flexible.

摘要

背景

主要目标是提高美国国立卫生研究院(NIH)患者报告结局测量信息系统(PROMIS®)中一些针对8至17岁儿童的自我报告项目库的内容覆盖范围,并将精确测量范围扩展到更高水平的身体功能。

方法

将来自1419名患有癌症、慢性肾病、肥胖症、有康复需求、风湿性疾病和镰状细胞病的儿科患者的数据与来自3048名儿童的原始标准化样本的项目反应相结合,以校准儿科PROMIS愤怒、焦虑、抑郁症状、疼痛干扰、疲劳以及身体功能上肢和活动量表的新项目。使用分级项目反应理论模型进行同步或并发校准,将所有项目置于同一量表上。

结果

在七个量表中增加了28个潜在新项目中的22个。为愤怒量表提出了推荐的简短形式,并修订了焦虑和抑郁症状量表的推荐简短形式。遗憾的是,我们在扩展身体功能项目库的测量范围方面并非特别成功。

结论

本研究扩展了PROMIS儿科项目库,以添加新内容并扩大测量范围。使用项目反应理论,在不改变基本测量量表的情况下对项目库进行了修订和扩展。对于愤怒、焦虑和抑郁症状,我们成功添加了新内容,这可能使这些项目库更加强健和灵活。